Does Accessia Health have a Provider Portal?
Accessia Health does not currently offer a Provider Portal. However, we recognize the value it could bring to providers and are actively exploring opportunities to develop this resource in the future. In the meantime, providers can connect with our team directly for support, referrals, and program information.
Cell & Gene Therapy: The Future of Rare Disease
For decades, rare diseases were defined by what they lacked: effective treatments, sustained funding, widespread awareness, and long-term outcome data.…
Beyond the Diagnosis: Navigating Financial Toxicity
Putting the Puzzle Pieces Together & Planning for the Financial Realities of Care When diagnosed with a rare or chronic condition, it…
How can I receive updates about my application or account?
Patients can now receive account updates directly via text message, including reminders, application updates, and other important notifications.
Text messaging is optional, and preferences can be managed at any time.
Learn more here: https://accessiahealth.org/accessia-health-expands-communication-options-for-patients/
Accessia Health Expands Communication Options for Patients
Accessia Health has introduced new communication tools designed to make it easier for patients to stay informed about their accounts…
March 2026 Newsletter
Click here to view our March 2026 Newsletter
Legal Rights After a Diagnosis: Insurance, Work & Costs
What’s legal about health? Being diagnosed with a chronic or serious health condition can bring many questions. In addition to…
Angela Nunez, CFE, CHC, CHPC
Angela Nunez holds a B.S. in Accounting from Dallas Baptist University. She is a healthcare compliance and privacy professional with more than 14 years of experience in compliance, risk, audit, and privacy. She has worked in both for-profit and nonprofit healthcare systems. She is dedicated to building strong compliance programs that promote transparency, accountability, and patient trust.
In her most recent role as the Ethics and Compliance Officer for the Urgent Care service line for Hospital Corporation of America (HCA), she supported operations across twelve states with over four hundred clinics. She developed policies and procedures, established reporting systems, and served as a consultant for new initiatives. She conducted due diligence on joint acquisitions and collaborated closely with legal teams on investigations and inquiries by the Office of Inspector General (OIG).
At the age of twelve, Angela was struck by polio. She knows firsthand the importance of having financial assistance during difficult moments. With the dedication of a doctor who took on her case for little to no money, she was able to start walking within a year and return to school.
In her free time, she spends time with her two adult children and takes long walks with her husband. She volunteers with the Hispanic Women’s Network as a mentor to Hispanic female high school seniors, helping them continue their education and guiding them toward their prospective colleges.
Navigating Higher Health Care Costs in 2026
Health care costs in America can change as quickly as a diagnosis. One month, a treatment is manageable; the next,…
Finding Stability in the Midst of Complexity: Natalia’s Story
Natalia is a wife and mother whose life has been shaped by chronic illness. What began as severe pain and…
February 2026 Newsletter
Click here to view our February 2026 Newsletter
President Green Talks RDD, Accessing Affordability
In recognition of Rare Disease Day, Accessia Health President Tiara Green joined Virginia This Morning to highlight the challenges individuals…
Rare Disease Day: History, Facts, and Advocacy Actions
Every year, millions of individuals and families around the world come together to recognize Rare Disease Day, a global movement…
Understanding Heart Failure: Information & Support
Heart failure is a chronic condition that affects daily life, long-term care, and financial stability for many individuals and families. Defined…
From Policy to Patients: Bridging the Medicare Part D Disconnect
While the Inflation Reduction Act introduces a $2,100 out-of-pocket cap and payment smoothing options for Medicare Part D beneficiaries, low…
FY 2026 Healthcare Funding: Progress for Patients with Rare and Chronic Conditions
Accessia Health welcomes the completion of FY 2026 healthcare funding and continued federal investment in research, care delivery, and access…
Five Tips to Improve Your Heart Health
Did you know? Heart disease is the primary killer of men and women in the U.S. Heart attacks often strike without…
Sean Haynie
Sean Haynie is a mission-driven development leader with 25 years of experience cultivating meaningful donor relationships and stewarding philanthropic support that translates into measurable, life-changing impact. Throughout his career, Sean has focused on building trust-based partnerships with individuals, foundations, and corporate supporters connecting generosity to outcomes that strengthen communities and improve lives.
His work centers on guiding donors through giving journeys centered on meaning, impact, and connection, from initial engagement through long-term stewardship. Sean has played a key role in securing multi-million-dollar support for mission-based organizations, advancing programs that expand access to care, strengthen community stability, and address persistent gaps faced by underserved and underrepresented populations. Grounded in principles of equity and compassion, he believes philanthropy is most powerful when rooted in trust, strengthened through collaboration, and guided by a human-centered approach.
Outside of work, Sean enjoys travel, cooking, spending time with family, and time near the coast, where slower mornings, long walks, and good conversation offer space to recharge.
Email Sean Here
January 2026 Newsletter
Click here to view our January 2026 Newsletter
Patients are delaying care over health insurance costs
Nearly a quarter of working-age adults have health insurance that leaves them underinsured, according to recent estimates. While having some…
Accessia Health Recognized with Multiple HDM Awards for Digital Excellence
Midlothian, Va. [January 21, 2026] — Accessia Health, a national nonprofit providing assistance to people with rare and chronic health conditions, is pleased…
Medicaid Cuts & Hidden Costs with Jennifer Noonan
In a recent article from Fierce Healthcare, Jennifer Noonan, Vice President of Clinical Strategy and Patient Engagement at Accessia Health,…
Wes’s Story with Fabry | Accessia Health
A former art director at DreamWorks Animation, Wes lived for years with unexplained pain before a family connection led to…
A Life of Service: From Detective to CML Survivor | Bryce’s Story
During his 35 years in law enforcement, Bryce Gardner ran toward the hardest moments people face. Retirement was finally supposed…
December 2025 Newsletter
Click here to view our December 2025 Newsletter
When Everything Feels Heavy: Facing Depression During the Holidays
While end-of-year festivities and celebrations are anticipated for millions across the world, approaching the holiday season may not come as…
2025 Dominion Energy Christmas Parade with Accessia Health
Tis’ the season for spreading a little happiness across the community! Accessia Health staff recently participated in the 2025 Dominion…
Cheryl’s Story with HAE | Accessia Health
Life with Hereditary Angioedema (HAE) was once like living a nightmare for Cheryl Cooney. Faced with incredibly painful attacks of…
Amanda Kinchlow, MAOL, PHR
As the Human Resources Manager, Amanda leads Accessia Health’s people strategy, culture initiatives, and workforce operations. With more than 15 years of HR leadership experience across nonprofit, healthcare, higher education, and corporate environments, she is dedicated to cultivating inclusive, mission-driven workplaces where employees feel supported and able to thrive.
In her role at Accessia Health, Amanda advises the President and Executive Leadership Team on workforce planning, HR governance, and people-related risk. She oversees all core HR functions and advances organizational modernization through improved systems and streamlined processes. Prior to joining Accessia Health, Amanda held senior HR roles at WestRock, Anthem, Change Healthcare, and Tribune Media, and served as adjunct faculty at Virginia Commonwealth University, teaching professional development and workplace readiness.
Amanda holds a Master of Arts in Organizational Leadership and a Bachelor of Science in Human Resource Management from Regent University and is currently pursuing her Doctor of Strategic Leadership at Liberty University. She is also a certified Professional in Human Resources (PHR).
November 2025 Newsletter
Click here to view our November 2025 Newsletter
Lori’s Story Continues: Finding Fabry Support Through Accessia Health
We’ve caught up with Lori Wise, a mother, grandmother, and patient advocate living with Fabry disease. With lifelong treatment every…
Rare Diseases and Being Treatment Ready
William Sarraille, JD, Founder, Sarraille & Associates – The barriers to treatment for people living with a rare disease can…
Accessia Health Advocates for Patient Access on Capitol Hill
Patient access to healthcare is a complex challenge, especially for individuals living with rare diseases or chronic conditions. In October,…
October 2025 Newsletter
Click here to view our October 2025 Newsletter
Access, Advocacy & Appreciation: The Heart of Pharmacy in Motion
President Tiara Green and VP of Clinical Strategy and Patient Engagement, Jennifer Noonan, sat down with Pharmacy Podcast Network host,…
Fight Over ACA Tax Credits: Interview With Jennifer Noonan
As the fall 2025 government shutdown continues, lawmakers continue to debate over healthcare. Jennifer Noonan recently sat down with Local…
WTVR Richmond: Tiara Green on Support for Rare Diseases
Families are stretched thinner than ever—facing rising premiums, copays, and long wait times for care. In our recent WTVR interview,…
Accessia Health Expands Leadership Team, Launches Advisory Councils to Advance Person-Centered Mission
Midlothian, Va. [September 30, 2025] – Accessia Health, a national nonprofit patient assistance organization, announces two new executive hires along…
September 2025 Newsletter
Closing out September, I’m reflecting on the incredible momentum we’ve built together this month. We’ve had the privilege of joining…
Health Insurance and Medication Coverage
Finding Purpose Beyond Diagnosis: Suzanne’s Story with Alpha-1
For nearly four decades, Suzanne Trapani has been caring for others as a registered nurse. However, life began to demand…
Amanda Thorsen
Amanda is a passionate advocate for individuals living with rare and chronic diseases, a commitment shaped by her own experiences with Hereditary Angioedema. Having faced ongoing challenges in accessing proper healthcare and obtaining life-saving medications, she has developed a deep understanding of the barriers patients encounter.
Over the years, Amanda has gained valuable insight while navigating these obstacles and is dedicated to using that knowledge to support others. She is excited to collaborate with fellow advocates to identify shared challenges and develop practical, realistic solutions that can drive meaningful change in the lives of patients and their families.
Lowell Thompson
Lowell became a patient advocate through lived experience, after years of ICU stays and repeated near-death events forced him to take charge of his own healthcare journey. With little guidance from the medical system, he turned to medical literature, connected with research directors, and traveled across the country to uncover answers—ultimately identifying the root of his illness and developing a treatment plan that resolved years of uncertainty in just months. This journey ignited his passion for advocacy and gave him firsthand insight into the importance of persistence, curiosity, and community when navigating healthcare.
Professionally, Lowell has led and co-founded ventures in technology, AI, and data privacy. He is also the host of Learning with Lowell, a podcast featuring more than 250 founders, researchers, and operators whose companies have collectively raised over $100M. His current projects include building community through TEDxLakeGeneva and connecting leaders across the Midwest innovation ecosystem.
As a member of the Patient Advocacy Committee, Lowell is committed to channeling both his personal journey and professional expertise to empower patients, amplify their voices, and help ensure that breakthroughs in research and care translate into meaningful improvements in people’s lives. His ultimate goal is to make sure no one feels as alone in their healthcare journey as he once did.
Michelle Teng
Michelle Teng a committed patient advocate living with MPS I Scheie syndrome. Diagnosed nearly 10 years ago, she have experienced the challenges of managing a rare condition firsthand and have benefitted from patient assistance through Accessia Health. This support has inspired Michelle to give back by volunteering as part of the Patient Advocacy Committee (PAC).
Through this role, Michelle is dedicated to amplifying patient voices, improving access to care, and ensuring that programs and services truly reflect the needs of those living with rare and chronic conditions. By sharing her perspective as a patient, Michelle hopes to help improve the overall patient experience and influence better outcomes for the rare disease community.
Ashley Moncrief
Ashley Moncrief brings over a decade of oncology nursing and research experience to her role on the Patient Advocacy Committee, where she represents the Myelodysplastic Syndromes (MDS) Foundation. Since beginning her career in 2012, Ashley has worked as an infusion nurse in an outpatient oncology clinic, on an inpatient myelosuppression/SCT floor, and as a Research Nurse Specialist overseeing Phase I, II, and III malignant hematology trials. She later served as Manager of Research Projects for Malignant Hematology, Cellular Therapy and Toxicity, and Plasma-Cell Lymphoma at an MDS Center of Excellence.
In 2023, Ashley became Director of Patient Care at the MDS Foundation, where her work has centered on strengthening patient advocacy through data-driven initiatives, patient surveys, and clinical trial awareness. She has also led efforts to develop resources that empower patients, caregivers, and healthcare professionals to better navigate MDS.
Through her role on the Patient Advocacy Committee, Ashley is dedicated to expanding this mission—improving the lives of those affected by MDS and ensuring that patients everywhere have access to the knowledge, resources, and support needed to confidently navigate their healthcare journey.
Casey Mescher
Casey is a devoted mother of twin 12-year-olds whose early arrival and weeks in the NICU introduced her and her husband to the vital role of advocacy in healthcare. That experience gave her firsthand insight into the challenges families face and the importance of having a strong voice within the medical system.
Professionally, Casey is a people-focused leader dedicated to recognizing the strengths of her team and ensuring they have the tools and support needed to thrive. The skills she has developed throughout her career, combined with the lessons learned during her children’s early health journey, have shaped her belief that advocacy is essential to improving healthcare outcomes.
As a member of the Patient Advocacy Committee, Casey is committed to helping individuals and families find their voice, access critical resources, and feel empowered as they navigate their own healthcare journeys.
Tara Keith
Tara is a devoted wife, mother, and grandmother who approaches life with enthusiasm and resilience. Diagnosed with indolent systemic mastocytosis (ISM) in her late twenties—after nearly a decade of undiagnosed symptoms—she has faced the challenges of navigating a rare disease with limited resources and specialized care. A turning point came in 1999, when the emergence of cutaneous mastocytosis led to a bone marrow biopsy and a confirmed diagnosis.
With specialized treatment unavailable in Louisiana, Tara has had to travel out of state for care, an experience that has deepened her commitment to helping others in similar circumstances. She is passionate about using her personal journey to offer hope, guidance, and practical support to fellow patients, easing the burdens that she herself endured.
Honored to contribute her voice and experience, Tara is dedicated to advancing meaningful support for individuals navigating their own complex health journeys.
Erin Hoch
Erin Hoch is a dedicated advocate for disability awareness and accessibility, inspired by her role as a mother to a son living with Infantile Pompe Disease. Residing in the Flathead Valley of Montana with her spouse, Erin is passionate about creating meaningful change within her community and beyond.
With a commitment to amplifying the voices of those directly impacted, Erin embodies the belief that “Nothing about us, without us.” She is honored to serve as a voice for change and strives to advance inclusion, accessibility, and understanding in all areas of life.
Marcie Coward
Marcie Coward was inspired to join the Patient Advocacy Committee because she believes in the importance of individuals learning to advocate for themselves. After navigating a healthcare system that did not always meet her needs, Marcie developed the skills to speak up and encourage healthcare professionals to be more sensitive and informed about her rare disease.
Through her role on the committee, Marcie hopes to raise awareness and empower others to better understand their health information, navigate treatment options, and effectively communicate their wishes with providers. Her goal is to equip patients with the tools and confidence to become their own strongest advocates.
LaTonya Burnett
LaTonya is a proud mother and grandmother, a local public school administrator, and an adjunct professor of psychology at the collegiate level. Her career has been dedicated to education, both in supporting students and in advancing her own learning. She is currently pursuing a second master’s degree in Educational Leadership to strengthen her ability to serve communities through leadership, policy, and advocacy.
She was inspired to join the Patient Advocacy Committee from a growing interest in research and policy that directly affect patient care. She believe patients deserve a strong “voice” in the planning, development, and implementation of healthcare practices. Too often, decisions are made without the full perspective of those who are most impacted, and she sees advocacy as a way to close that gap.
Through her involvement, LaTonya hope to bring forward what she calls “actionable awareness” not just raising issues, but helping turn those concerns into meaningful changes that improve patient experiences and outcomes. Her background in education has given me a deep appreciation for empathy, communication, and ensuring equity in access and support. She aim to apply those same values here, helping to elevate the needs and voices of patients so their care is not only effective, but also respectful and human-centered.
Cheryl Cooney
Cheryl is a passionate healthcare advocate inspired by her own experiences living with a rare autoimmune disease (HAE) and undergoing treatment for non-Hodgkin’s lymphoma. With a background in dentistry, she has witnessed firsthand how many individuals struggle to access essential care and believes oral health is a vital part of overall well-being—especially for those whose health has been impacted by treatments such as chemotherapy.
Dedicated to breaking down barriers, Cheryl is committed to supporting and advocating for patients who may not be able to advocate for themselves. Her mission is to ensure that others have access to the care and resources they need, and to serve as a voice for those navigating complex health challenges.
Wes Burian
Wes Burian is a film art director and visual effects artist whose career spans work at Tippett Studio and
over 15 years at DreamWorks Animation. He contributed to films including Men in Black II, Blade II, The
Haunting, Shark Tale, Monsters vs. Aliens, and the Kung Fu Panda trilogy, where he served as an Artistic
Department Head designing character and environment looks. Alongside his studio career, Wes has
shared his expertise through Master’s-level teaching, international conferences, and community-based
kids’ art programs.
Living with Fabry disease, a rare genetic disorder, Wes has received enzyme replacement therapy since
2003 and recently completed a gene therapy clinical trial. His personal experience with chronic illness has
fueled his dedication to patient advocacy and research. He has served on Patient Advisory Boards,
contributed to CTTI’s Clinical Trials Flexibility Project, and engaged in legislative advocacy to advance rare
disease initiatives.
In 2022, Wes was honored with the EveryLife Foundation’s RARE Artist Award for his artwork Sprout,
which has been featured widely as a creative expression of living with Fabry disease.
Wes is eager to join Accessia Health’s Patient Advisory Committee because he believes his lived
experience, creative skills, and advocacy background can help amplify patient voices, guide support
programs, and ensure that assistance reaches those facing both medical and financial challenges. He
aligns deeply with Accessia’s mission and is committed to strengthening resources that improve the lives
of people navigating rare and chronic conditions.
Empathy Begins Where Assumptions End: Building Trust without Bias
Jennifer Noonan, MSN, RN, Vice President, Clinical Strategy and Patient Engagement — I was recently reminded of how quickly we…
Your Monthly Accessia Health Newsletter
As summer winds down, we’re sharing updates, opportunities, and ways you can take part in our mission to uplift and…
Medication Coverage and Insurance: What You Need to Know
Whether you’re managing a chronic condition or just trying to make sense of your health insurance plan, understanding how…
Your Monthly Accessia Health Newsletter
As we continue our work to build a more equitable future in healthcare, I’m excited to share several important updates…
Alan Wood, MA
As the Executive Vice President of Development and Growth, Alan oversees all fundraising, business development and partnership initiatives. Alan joins Accessia Health with over 25 years of experience driving business development, donor engagement, and market strategy in both nonprofit and pharmaceutical sectors. He is a seasoned leader with a proven record of building sustainable partnerships and high-performing teams.
Most recently, as Executive Vice President of Business Development at Patient Advocate Foundation (PAF), Alan spearheaded innovative fundraising initiatives that secured long-term corporate partnerships and broadened disease-specific support funds, directly enhancing the organization’s reach and impact. His fundraising leadership was instrumental in cultivating high-value donor relationships and securing support from major corporations. Alan has successfully combined business strategy and social impact to identify new opportunities to better support patients and foster enduring relationships with key stakeholders. In the wake of COVID, Alan developed and launched the first of its kind line of health equity copay funds designed to support those hardest hit by adverse social determinants of health and disease burden.
Prior to PAF, Alan worked in the pharmaceutical industry as both a representative and a sales manager with a focus on equitable access and managed care markets. As sales manager, he led a team across southern Virginia, driving consistent revenue growth and executing nationally recognized marketing strategies. Alan leads with a hands-on coaching approach, building a culture of performance and compliance while aligning team development with organizational goals.
Alan earned dual undergraduate degrees from Stetson University, a Bachelor of Science in Psychology and a Bachelor of Business Administration in Business Management. Additionally, Alan holds a Master of Arts degree in Psychology from The Catholic University of America.
After work, Alan enjoys time with his wife and their 2 children, playing tennis, and walking their dog.
Healthy People. Healthy Communities.
Accessia Health Joins Louisville Community of Care Project to Advance Health Equity
Up to $2,500 in financial support for essential screenings and diagnostic care in underserved community LOUISVILLE, July 15, 2025 — Accessia…
WTVR Richmond: Highlighting The Importance Of Access To Treatment
President Tiara Green recently joined Virginia This Morning to shed light on the challenges individuals with rare and chronic conditions…
Access Part D prescriptions with the Medicare Prescription Payment Plan (M3P)
Laura Cave, Editor At Large, Paytient – Managing rare and chronic disease often comes with prescriptions and their costs—and for…
A Message from President Tiara Green on Recent Medicaid Policy Cuts
Midlothian, Va. (July 3, 2025) – In light of the passage of the current administration’s ‘Big, Beautiful Bill,” Accessia Health…
Evolving Patient Assistance: A Holistic Approach to Access and Engagement
In this interview with First Report Managed Care, VP of Clinical Strategy and Patient Engagement, Jennifer Noonan, MSN, RN,…
Life After the Mines: Harold’s Story with Alpha-1
Harold Phillips spent 23 years working in coal mining, where long-term exposure to coal and silica dust is a known…
June 2025 Newsletter
Click here to view our June newsletter
Raising Alzheimer’s Awareness and Support
Alzheimer’s disease is the most common form of dementia, gradually affecting a person’s memory, thinking, and behavior over time. Today,…
James P. Johnson
In his role as Executive Vice President of Operations at Accessia Health, James oversees both Operations and Information Technology, bringing strategic integration to the organization’s internal systems, patient services, and digital infrastructure. With more than 25 years of experience across commercial, Medicaid, and Medicare health plans, he is known for delivering measurable outcomes in areas such as profit and loss management, value-based care models, network development, and digital innovation.
James has held senior leadership roles at Virginia Premier, WellCare Health Plans, and Humana. Most recently, he served as Health Plan President/COO and VP of Network Development/Operations at Molina Healthcare of Virginia, overseeing state operations including business outsourcing relationships. His leadership delivered results across key initiatives including the integration of core systems post-M&A, achieving top-tier operational readiness scores for Medicaid programs, and implementing innovative provider engagement that strengthened compliance and provider satisfaction.
Beginning his career as a Healthcare Administration Specialist in the U.S. Armed Forces Medical Command, James built a foundation of service and operational rigor. That experience, combined with his civilian tenure, shaped his deep expertise in health plan payer functions, regulatory compliance, and stakeholder engagement. His leadership approach has driven results by focusing on his OATS framework: Optimizing technology and operations, Accelerating performance growth, Transforming teams, and delivering Service excellence.
James holds a B.S. in Information Technology and is a recognized thought leader in network development, claims operations, regulatory strategy, and value-based contracting. A native of Chicago’s Englewood neighborhood, he brings not only professional expertise but also a strong sense of purpose and equity to the healthcare industry.
Tabitha’s Story of Resilience, Recovery, and Access to Life-Saving Treatment
As a retired registered nurse, wife, and mother of three, Tabitha Gachiengu spent her career caring for others. But, in…
May 2025 Newsletter
Click here to view our May newsletter
Understanding CIDP: Navigating Life with a Chronic Neuropathy Diagnosis
Living with chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) can mean navigating daily fatigue, muscle weakness, and uncertainty around treatment outcomes—all of…
The American Journal of Healthcare Strategy Interview with Tiara Green
With nearly $220 billion in medical debt burdening Americans today, health equity for patients, especially those living with rare diseases…
Asembia 2025: Innovation, Collaboration, and Compassion at the Heart of Specialty Pharmacy
with insights from Jennifer Noonan, VP of Clinical Strategy and Patient Engagement, Dave Griffiths, VP, Development – Held at the…
April 2025 Newsletter
Click here to view our April newsletter
Frequently Asked Questions: Medicare Prescription Payment Plan (M3P)
In part 3 of our series on Medicare Part D changes, Accessia Health welcomed expert conversation and insight into what is…
Living with Sarcoidosis: Insights and Support
Sarcoidosis, a condition that causes tiny collections of immune system cells (granulomas) to form in one or more organs in…
SSDI and SSI: Lifelines for Individuals with Rare or Chronic Conditions
Living with a rare or chronic health condition can be overwhelming when work becomes impossible due to complications. That’s where…
March 2025 Newsletter
Click here to view our March newsletter
Medicare Changes in Motion: Early Experiences and Key Insights
Beginning January 2025, Medicare Part D beneficiaries have the option to enroll in the Medicare Prescription Payment Plan (M3P)- a…
Spring Into Better Health: Wellness Tips for a Fresh Start
Spring is a season of renewal, making it the perfect time to re-center and prioritize goals for improving your overall…
Partnerships
Understanding Myasthenia Gravis and Finding Support
For over 70,000 Americans, getting the diagnosis of Myasthenia Gravis (MG) can be daunting and confusing. While the onset of…
Accessia Health Opens Financial Assistance Program For Individuals With Heart Failure
Midlothian, Va. (March 3, 2025) – Accessia Health, a national nonprofit 501(c)(3) patient assistance organization, is now offering financial assistance…
February 2025 Newsletter
Click here to view our February newsletter
Accessia Health Opens Programs For Individuals With Rare Autoimmune Diseases CIDP and Myasthenia Gravis
Midlothian, Va. (February 11, 2025) – Accessia Health, a national nonprofit 501(c)(3) patient assistance organization, is now offering financial assistance…
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December 2024 Newsletter
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Advancing Healthcare Access: Celebrating 2024 As We Look Ahead to 2025
As we look back on the last year, we reflect on the progress made in supporting those living with a…
My Kids Have a Mom Because I Have Access to Medicine
November 29, 2024 — “Accessia Health has made such a difference in the lives of my family, not just the…
November 2024 Newsletter
Click here to read our November 2024 newsletter
Frequently Asked Questions – Upcoming Changes to Medicare
We recently hosted a two-part webinar series focused on the Inflation Reduction Act and its impact on Medicare. The sessions…
Patient Needs and Advocacy with Pharmacy Podcast Network
Specialty pharmacy plays a critical role in addressing the complex needs of patients with rare and chronic conditions. Jennifer Noonan,…
Practical Implications of Current and Upcoming Medicare Part D Changes
Coming in 2025 and 2026, there will be some significant changes to Medicare Part D that may affect you. While…
Accessia Health Opens Financial Assistance Program For Individuals With Rare Blood Disorder Myelodysplastic Syndromes
Midlothian, Va. (October 21, 2024) – Accessia Health, a national nonprofit 501(c)(3) patient assistance organization, is now offering financial assistance…
Understanding the Inflation Reduction Act and Part D Changes for Medicare Open Enrollment
Accessia Health hosted the Chief of Staff at the Centers for Medicare and Medicaid Services (CMS), Kristi Martin, for part…
Corporate Donors
From Equity to Access: Insights from the Healthcare Advocate Summit
Dave Griffiths, VP, Development – The 2024 Healthcare Advocate Summit (HAS) in Las Vegas brought together a passionate group of healthcare…
Accessia Health Joins the National Health Council to Collaborate on Patient-Centered Health Policy
Midlothian, Va. (September 17, 2024) – Accessia Health, a national nonprofit 501(c)(3) patient assistance organization, announces its membership with the…
News & Blogs
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Carrie’s Journey: Embracing Life with Gaucher Disease
Carrie Choate is a 42-year-old pediatric physical therapist dedicated to helping children with special needs and rare diseases. She is…
Accessia Health Expands Financial Assistance Program for Oral Health Care To Support Individuals with Chronic Conditions
Program improves access to vital services for those in Michigan, Ohio and Indiana. Midlothian, VA (August 28, 2024) – Accessia…
August 2024 Newsletter
Click here to view the newsletter.
Accessia Health Opens Financial Assistance Program For Individuals With Thrombotic Thrombocytopenic Purpura, a Rare Blood Disorder
Midlothian, Va. (August 19, 2024) – Accessia Health, a national nonprofit 501(c)(3) patient assistance organization, is now offering financial assistance…
Access Survey
Chronic Disease Month: The Importance of Holistic Care
July is Chronic Disease Month, dedicated to highlighting the importance of comprehensive care for individuals living with chronic conditions. In…
Shaping the Future of Healthcare: Key Insights from Top Conferences
As we head in to the second half of the year, several significant healthcare conferences have taken place, each offering…
June 2024 Newsletter
Click here to view our newsletter.
Managing Your Healthcare Costs: Tips to Help Lower Your Financial Burden
Americans today have an astonishing $220 billion in medical debt with about 3 million people owing more than $10,000 each.…
Progress, Potential, and Possibilities Podcast Interview with Accessia Health
Progress, Potential, and Possibilities host, Ira Pastor, interviews Accessia Health President, Tiara Green, to learn more about how the organization…
May 2024 Newsletter
Click here to view the May 2024 newsletter.
Pharmacy Podcast Network Interviews Accessia Health at Asembia AXS24
In a recent interview with the Pharmacy Podcast Network, during the Asembia Specialty Pharmacy Summit (AXS24), Accessia Health shares their…
Tiara Green, President of Accessia Health, has been accepted into Forbes Nonprofit Council
Forbes Nonprofit Council is an invitation-only community for chief executives in successful nonprofit organizations. Midlothian, Va. (May 15, 2024) —…
Introducing Our Enhanced Patient Portal and Application System
We are thrilled to announce the launch of our updated application process and patient portal interface! These upgrades are designed…
Accessia Health Recognized as a Healthy People 2030 Champion for Supporting the Initiative’s Vision
Midlothian, VA — Accessia Health, a national nonprofit 501(c)(3) patient assistance organization that supports individuals living with rare or chronic…
Accessia Health Appoints Tiara Green to President
Accomplished leader to drive operational growth and expand access to care. Midlothian, Va. (April 24, 2024) – Accessia Health, a…
April 2024 Newsletter
Click here to view the April 2024 newsletter.
Your Assistance, Your Choice
March 2024 Newlsetter
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Understanding Allergy, Asthma, and Immunology and Where to Find Support
Allergies and asthma are some of the most common chronic diseases affecting Americans today. If you don’t have allergies or…
February 2024 Newsletter
Click here to view our February 2024 newsletter.
The Success of Community Advocacy on Copay Assistance
February 13, 2024 – Over a decade ago, in response to outreach from patients and other stakeholders including Accessia Health,…
Understanding Fabry Disease and Finding Support
Living with a chronic health condition can be challenging, especially when it’s rare, like Fabry disease. Affecting up to 1…
January 2024 Newsletter
Click here to read our January 2024 newsletter.
December 2023 Newsletter
Click here to read our December newsletter.
Caring for Yourself While Caring for Others This Winter
The holidays can be stressful for nearly everyone. Family and work gatherings abound, the days are colder and shorter, and…
How Lori Is Giving Back with Fabry
Before she retired, Lori was a lab technician. Today, she spends retirement enjoying her family and grandchildren and giving back…
Financial, Logistical, and Moral Support: “Caregiving Is Bigger Than Myself”
A Q&A with Aaron Mishoe Millions of Americans serve as unpaid caregivers for their families and loved ones. According to…
Kristin Shifflett
A dedicated leader at Accessia Health since 2015, Kristin began as a Patient Services Representative and progressed to Director of Operations, exemplifying her outstanding leadership skills.
Beyond managing programs, supporting callers, and overseeing operations, Kristin is driven by a deep commitment to helping others. Her academic foundation in Biomedical Engineering from Virginia Commonwealth University adds a unique perspective to her role, underscoring her holistic approach.
In both her professional and personal life, Kristin’s unwavering commitment to aiding others shines through, making her a compassionate and effective leader. When not working, she enjoys spending quality time with her husband and two boys.
November 2023 Newsletter
Click here to view the November 2023 newsletter
I am currently on assistance, do I have to reapply at the beginning of the year?
At this time, Accessia Health only requests re-enrollment information every two (2) years based on your eligibility review date. There is not need to reenroll at the beginning of the year. If you are unsure of your review date, you can locate this information in your patient portal or by calling 800-366-7741 and using our automated system.
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October 2023 Newletter
Click here to view the October 2023 newsletter.
Ready for Open Enrollment? Tips for Taking Control of Your Healthcare
Open Enrollment season is here for 2024 coverage and for many, navigating the complexities of healthcare plans, coverage options, and…
When will I receive information about my assistance in 2026?
Assistance amounts for 2026 will not change at this time.
All assistance amounts can be found on the patient programs page of our website. You can also send us a message through your patient portal account if you have questions about your assistance.
September 2023 Newsletter
Click here to view our September 2023 newsletter.
Accessia Health’s Jennifer Noonan joins National Association of Specialty Pharmacy (NASP) Board
September 25, 2023 – We’re thrilled to announce that our very own Jennifer Noonan has been appointed to the National…
Jenn Kerfoot
Jenn brings their deep understanding of the complexities and nuances within the Medicare Advantage & Value Based Care landscape to their work at DUOS, where they lead business development, go-to-market strategy, and marketing. By leveraging data-driven insights and market intelligence, they spearhead the development of tailored products and services that cater to the unique needs of Medicare Advantage plans and deliver unparalleled value to clients and beneficiaries alike.
As a military veteran, Jenn brings leadership and vision to diverse audiences, and offers a unique perspective within start-ups and high-growth stage companies: previous leadership roles include FarmboxRx, Excelera Health and NationsBenefits. With a passion for organizational mission and values, as well as the unique competitive advantage of establishing a strong culture, Jenn works with all departments to streamline processes and programs that integrate the member experience into every aspect of the business.
Beyond their role at DUOS, Jenn actively contributes to the industry’s progress as a thought leader leveraging expertise and advocacy for innovative healthcare practices to enhance healthcare accessibility and quality.
August 2023 Newsletter
Click here to view the August 2023 newsletter.
Share Your Story
Recognizing Chronic Disease Day
Jennifer Noonan, MSN, RN, Sr Director Clinical Programs & Compliance, Accessia Health – Today, we’re recognizing Chronic Disease Day. Living with…
Careers
Office of Inspector General releases Accessia Health from Integrity Agreement
Successful release is a key milestone in a multi-year organizational transformation RICHMOND, Va. – Accessia Health, a national nonprofit patient…
How do I know where my income falls within the Federal Poverty Limits (FPL)?
If you are unsure where your income falls according to Federal Poverty Limits (FPL), click here to view Accessia Health’s guidelines.
You can also calculate your FPL using this calculator tool here.
Asembia Summit 2023: Patient Assistance is not one-size-fits-all.
May 22, 2023 – Dave Griffiths Vice President Development Accessia Health – Earlier this month, I joined thousands of the…
Changing the Landscape of Patient Care: Your Assistance, Your Choice
Jennifer Noonan, MSN, RN Senior Director, Clinical Programs and Compliance, Accessia Health (May 9, 2023) As senior director of clinical…
What do you cover besides medications and insurance premiums?
Accessia Health provides financial assistance for:
- health insurance premiums
- medication copayments
- travel (limited to a max assistance of $500 per year)
- other approved essential medical expenses**
**Coverage of items or services under Medical Expenses is determined at the sole discretion of Accessia Health; and is subject to change based on clinical correlation with covered diagnosis. Coverage of such items and services may not be appealed by any individual or company.
Questions related to specific items covered under Medical Expenses require clinical review for compliance purposes, and responses will be provided within 3-5 business days. Inquiries about coverage of medical expenses should be directed to assistance@accessiahealth.org.
Opt-In Confirmation
Your Assistance. Your Choice.
Here for Good
Accessia Health Receives Grant for Oral Healthcare Assistance Program
UPDATE March, 4, 2024: Since original publication of this announcement, the Oral Health Program has been expanded and now serves…
Caitlin Donovan
Caitlin Donovan is the Global Head of Uber Health. She joins Uber most recently from MyOrthos, an Orthodontic Services Organization, where she served as Chief Operating Officer. Prior to that, Caitlin developed her knack for tackling obstacles to patient care as Chief Operating Officer of Circulation and Executive Vice President of Operations at LogistiCare (now ModivCare), specialty benefit managers in the non-emergency medical transportation space. She also served as the Vice President of Operations at CareCentrix with a focus on home health and post-acute care. Early in her career, she worked in finance as an investor at Bain Capital and as a member of the internal consulting group at Summit Partners. She earned her bachelor’s degree in Economics from Harvard University and lives in Dover, Massachusetts with her husband and two boys.
Program Status Opt-In
4 Ways to Prioritize Mental Health During the Winter Season
December 2, 2022 — Winter is here, and with it comes a myriad of celebrations, feasts, and gatherings. It also…
Finding Hope with Chronic Myeloid Leukemia
November 29, 2022 — Glen has Chronic Myeloid Leukemia (CML), but he doesn’t let that diagnosis hold him back and…
Cathy’s Patient Story Managing HAE, Lupus, And MS
November 29, 2022 — Cathy has lived for 62 years with Hereditary Angioedema, and her husband Duane lives with both…
COPD: Symptoms, Diagnosis, Treatment & Assistance
November 28,2022 — Breathe in… breathe out. Most of life begins with breath. In fact, we tend to take something that…
If I utilize all my funding before the end of the calendar year, can I request additional funding from Accessia Health?
The maximum assistance amounts are determined on an annual basis. If your assistance amount is utilized before the end of the calendar year, we are unable to offer additional assistance in that year.
We encourage you to reach out to your provider’s office or pharmacy to discuss any additional resources. You can also find resources on the patient programs page.
If I do not utilize all my assistance in 2025, will it carry over into 2026?
Assistance from 2025 does not carry over to 2026.
Your assistance amount will reset on January 1, 2026.
Please visit the patient program page to see if any changes to the total assistance amount are noted for your assistance.
Why has my amount of assistance changed?
Accessia Health relies on the generosity of donors to fund our programs, so we can then support our patients. Funding amounts are carefully reviewed each year to determine how much assistance we can offer to reach as many patients as possible.
Living with GIST
November 17, 2022 — Living with a chronic condition or disability is hard enough, then there are the never-ending medical…
Parenting a Child with a Chronic Condition
October 28, 2022 — Liam’s first bleed was in daycare when he fell on the playground and hit his…
Give Back, Give Hope
DEI Calendar for October
October 1, 2022 — Each month, our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. For…
The Effects of Sickle Cell Disease and How Accessia Health Can Help
September 21, 2022 — Imagine you’re an expecting parent. You’re so excited for the little bundle of joy growing and…
Donor Thank You
DEI Calendar for September
September 1, 2022 — Our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. This month, we…
Lung Cancer and The Effect of Patient Assistance
August 25, 2022 — “It’s the best thing that could have happened… All of a sudden your life is changed…
Contact Us Form Thank You
Share Your Story Thank You
Spinal Muscular Atrophy and How We Can Help
August 3, 2022 — Meet Stella. At three weeks old, Stella was diagnosed with Type 1 Spinal Muscular Atrophy. Her…
DEI Calendar for August
August 1, 2022 — Our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. This month, we…
Amplify Your Voice, Control Your Care
Helpful Documents
Alzheimer’s Disease, Brain Awareness, and How Accessia Health Can Help
July 11, 2022 — Our minds are beautiful, unique things. They help us remember birthdays and calculate math equations; they…
Inherited Retinal Dystrophies And Finding Help
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Compliance
Advocacy and Policy
Coverage important terms
What is an EOB?
Health Insurance Card: A Quick Look
What is a special open enrollment period (SEP)?
FAQs
How long do I have to submit claims?
Claims must be submitted within 4 months from the date of service to be considered for payment.
How are assistance payments made?
For copayment assistance with your FDA approved and indicated medications for the program diagnosis, an Accessia Health pharmacy benefit card is mailed to you upon approval. To request another copy, call us at (800) 366-7741. In addition to your Accessia Health ID number, below is the information that is on your pharmacy benefit card and needed for your pharmacy to process a claim.
Rx BIN:610020
PCN:PXXPDMI
Click here to view a list of Group Codes by Program.
For all other assistance, a payment card will be provided for you to pay eligible vendors and/or providers directly. If you are unable to use your payment card, we may be able to reimburse you or pay the vendor directly via check.
I may not need to use my assistance very often. What should I do?
If Accessia Health has not made a payment on your behalf in four (4) months, your assistance will close. Once your assistance closes, you will need to reapply.
How do I obtain my remaining amount of assistance?
You may view pay history and remaining assistance amount through your patient portal account. This information may also be available by speaking with a representative at (800) 366-7741.
Do I have to do anything to keep my assistance active?
Accessia Health periodically reviews each patients’ assistance to verify that eligibility criteria is still met. The review timeframe may vary by program. Notification will be sent to the patient 30 days prior to the due date.*
*Any changes to address, household income and/or health insurance should be immediately reported to Accessia Health.
I submitted my application and required documentation. When will I know if I am approved?
We will send a determination of patient eligibility via postal mail or patient portal account once documentation has been reviewed.
How can I check the status of my application?
You may check the status of your application(s) through the patient portal or speak with a representative at 1-800-366-7741.
How can I submit my documents?
Submit documents via:
What are application requirements?
Patients must meet financial and insurance requirements as well as have an eligible diagnosis. Documentation may be requested to confirm any of these requirements.
How can I apply for assistance?
Ways to apply:
Do you have to be a US citizen to apply?
To be eligible for assistance, you must legally reside in the US or one its territories and receive treatment from a US provider.
Is there a time limit to submit claims to Accessia Health?
Accessia Health has a 4-month timely filing limit for eligible claims or payments. Claims must be received within 4 months of the eligible date of service to be considered for payment.
Why won’t you assist my patient with their medication cost?
Accessia Health provides copay assistance for eligible patients if the treatment prescribed by their physician is FDA approved and indicated for the program diagnosis.
How do I submit claims for my patient?
Pharmacy claims may be submitted electronically for approved patients. Pharmacies must be contracted with our PBM vendor to submit electronic claims for pharmacy billing of eligible medication copays. Some helpful billing information is below.
Rx BIN: 610020
PCN: PXXPDMI
Click here to view a list of Group Codes by Program
How do I obtain the patient’s Accessia Health ID number?
If the pharmacy or provider has a date of service(s) that they wish to submit to Accessia Health, they may obtain the ID number from the patient.
How can I confirm the start date for my patient’s Accessia Health assistance?
Accessia Health may only provide very limited information to the pharmacy or provider. Correspondence is sent to the patient once an eligibility determination has been made.
Once an application eligibility determination has been made, correspondence is sent directly to the patient.
An Accessia Health patient may request a joint-call with their provider in order to discuss information in more detail if needed.
How will I know if my patient has been approved or denied?
Correspondence is sent to the patient once an eligibility determination has been made. The patient may contact Accessia Health to speak with a representative.
What information is needed to apply for my patient?
- Patient’s first and last name
- Patient’s date of birth
- Demographic information
- Health Insurance details
- Estimated household income
- Number of household dependents
How can I apply for my patient?
Applications may be submitted here
How can I submit required documents on behalf of my patient?
I am a new patient and would like to apply for assistance. What should I do?
If you are a new patient seeking assistance, please visit www.accessiahealth.org to view our current programs and/or apply for assistance.
Do I need to reapply for assistance with Accessia Health now that you changed your name?
No, you do not need to reapply for assistance. However, as you know, we periodically review all patient’s eligibility to ensure that you continue to qualify for assistance. If you receive a letter which requests documentation to determine continued eligibility, it is very important to submit all requested information by the provided deadline. Failure to do so will result in assistance closure and a new application would be needed.
Educational Resources
Legal Assistance
Patient Programs
Mark Harris
After a brief stint in minor league baseball, Mark’s career started as a database programmer with Choicepoint/LexisNexis. He was convinced by an acquaintance to move into consulting at Ariba (since purchased by SAP) where he found a successful niche implementing spend management software. Rising through the consulting ranks, including a brief detour at IBM, he made his way into management. Since then he has held roles across SAP’s procurement software division, including Customer Success, Solution Management, Marketing, and Product Management. He recently spent two years in Japan working on a comprehensive regional improvement program before returning to the US and the Product organization.
Mark acquired his BS in Psychology from the College of William and Mary in Virginia. He currently lives in San Diego, CA where he enjoys spending as much time outside as possible.
Lee Smith
Lee served as Chair of the Accessia Health Foundation Board in 2021 before joining the Accessia Health Board. He is the Head of Commercial with Element Science, Inc. with over 15 years of experience in effective medical-based sales management.
Lee is an entrepreneurial leader who develops high-performance sales teams and creates winning sales organizations with heightened senses of urgency and accountability. Prior to his time at Element Science, he was the Head of Sales for Philips BioTel Heart, National Sales Director for LipoScience, and Regional Sales Manager for Hologic, Inc.
Lud Kimbrough
Lud brings more than 35 years of entrepreneurial, consulting, and executive leadership experience to the Accessia Health board. He has guided nonprofit, publicly held, private equity-backed, and startup organizations through periods of growth, transition, and turnaround, serving in roles including president, CEO, and managing director. His work spans diverse industries such as marketing, aerospace tooling, cryogenics equipment, outdoor advertising, and cable television.
Throughout his career, Lud has focused on balancing strategy, human capital, and financial performance, building strong teams, embracing new technologies, and understanding risk. He serves as chair of Accessia Health’s Audit Committee, where his finance and accounting expertise is central to the board’s oversight and strategic direction. His experience guiding organizations through change, adapting to evolving regulations, and diversifying services and revenue streams informs Accessia’s growth and sustainability efforts.
Lud was inspired to join Accessia Health by his commitment to giving back to the community and by personal connections to family members with chronic conditions. He sees patient assistance as essential in today’s healthcare system, bridging gaps created by insurance limitations and out-of-pocket costs that often exceed family resources. He is particularly encouraged by the shift at the federal level from treatment to prevention and believes Accessia Health can continue to innovate by monitoring emerging treatment protocols, pursuing targeted funding opportunities, and exploring new services that address health inequities and bridge healthcare gaps.
Serving on the Accessia Health board also allows Lud to see the tangible impact of patient assistance firsthand. He values hearing patient feedback, from testimonials to personal interactions during events like Hill Day, and finds the dedication and energy of Accessia Health team members especially rewarding. Outside of board service, Lud volunteers with the Chesapeake Region Accessible Boating nonprofit, teaching sailing to physically and developmentally challenged individuals.
Brian L Fink, JD
Brian L. Fink currently serves as President & CEO of an Ohio-based manufacturing company. He holds a Master of Business Administration and a Juris Doctor from the University of Akron and is admitted to practice law in the State of Ohio. He brings more than 30 years of diverse experience spanning executive leadership, operational management, small business ownership, international business development, and service on profit and nonprofit boards.
Brian was inspired to join the Accessia Health board through his connection with board member Russ Phillips, Jr. and his family, whose son was diagnosed with a rare condition. Brian also saw firsthand the challenges faced by patients and families while supporting his father through chronic myeloid leukemia. These personal experiences, combined with his professional background, guide his commitment to ensuring patients have access to coordinated care, financial assistance, and supportive services.
With a blend of legal, executive, and international business experience, Brian contributes to Accessia Health by providing strategic oversight from the organizational level down to operational execution. He helps ensure the organization’s services meet patient needs within a complex healthcare and regulatory environment. His perspective as a CEO informs governance, risk management, and long-term strategy, while his legal training adds structure and clarity to navigating operational and compliance challenges.
Brian is particularly interested in leveraging technology to improve patient diagnoses, coordination of care, and distribution of benefits. He regularly advocates for patients and raises awareness about patient assistance programs within his community, sharing critical information with those facing rare or chronic conditions. Outside of his board service, Brian enjoys spending time with his family, managing his farm, traveling, and serving on the boards of two local companies, while remaining active in his local church.
Brian Landry
Brian’s extensive nonprofit healthcare experience directly informs his work on the Accessia Health board, where he provides guidance on programs that remove barriers to care and strengthen patient support. He earned a BS in Marketing from Louisiana State University and served over 31 years in nonprofit hospital executive leadership, most recently as Senior Vice President of Marketing, Public Affairs, and Development for LCMC Health, an eight-hospital nonprofit system in the New Orleans area. He played a key role in the creation and growth of LCMC Health, including the development and management of the $1.1 billion, 446-bed University Medical Center, which replaced Charity Hospital and University Hospital after Hurricane Katrina.
Prior to LCMC Health, Brian spent 28 years at New Orleans Children’s Hospital, leading marketing, public affairs, and development and serving as the hospital spokesperson. He regularly presented at board meetings, contributed to strategic planning, and helped expand patient-focused programs that addressed both medical and family needs.
Brian believes Accessia Health’s role is both practical and personal. Beyond tangible assistance like medical treatment, financial support, transportation, and housing, he sees the organization’s work providing patients and families with hope, comfort, and compassion. He is optimistic about innovations that can improve access and affordability in healthcare, while acknowledging that broad, systemic change will require coordinated action at the national level.
Outside of his board service, Brian is motivated by his family, faith, community, and music. He is closely connected to his married daughter, two married sons, and eight grandchildren. He contributes his strategic planning expertise to St. Joseph Benedictine Abbey & Seminary College, is an active member of the Metairie Rotary Club and American Legion Post 377 and continues to play trumpet with nonprofit and community bands, including the American Legion Post 377 band and the Deutsches Haus German band.
Russell E. Phillips Jr., CPA, CVA, MAFF
Russ Phillips is the Managing Partner of The Phillips Organization, a certified public accounting and consulting firm based in Canton, Ohio. He holds a bachelor’s degree in accounting from Walsh University and is licensed as a Certified Public Accountant by the Accountancy Board of Ohio. Russ also holds the Certified Valuation Analyst and Master Analyst in Financial Forensics credentials, with specialized expertise in bankruptcy, insolvency, and business reorganization through the National Association of Certified Valuators and Analysts.
Russ brings a practical financial lens to the board of directors, paired with his personal experience navigating disability, insurance complexity, and long-term care planning firsthand.
In addition to the financial expertise Russ brings to the board of directors, his commitment to patient advocacy is deeply personal. When his son was diagnosed with dystonia at age 11, Russ and his family became active advocates for their child, the Dystonia Foundation, and others living with rare and costly chronic conditions. That experience shaped his understanding of how insurance structures, out-of-pocket costs, and financial penalties often fail families who need care the most. He believes that while insurance is meant to spread risk, patients with frequent or expensive care often carry a disproportionate burden.
As Treasurer of Accessia Health, Russ brings a practical financial and tax perspective grounded in decades of business leadership. He understands that strong financial stewardship directly affects patients’ access to assistance, sustainability of programs, and the organization’s ability to respond as healthcare costs continue to rise. He is particularly interested in helping Accessia Health explore new models that strengthen revenue, expand patient education, and increase the organization’s ability to serve more patients over time.
Beyond his board service, Russ remains active in professional organizations and his local YMCA. He values family, friendships, community, and maintaining a well-balanced life. He and his wife Tammy have been married since 1982 and are the parents of two adult children.
Mitch Mula
Mitch earned his Bachelor of Science degree in Allied Health with a concentration in Physical Therapy from the Louisiana State University School of Allied Health. He began his career as a staff physical therapist at Baton Rouge Medical Center, working closely with individuals managing long-term, complex conditions. He later launched and oversaw private outpatient clinics and a rehabilitation company providing therapy services in long-term care facilities.
Over the years, Mitch expanded into the insurance and financial services industries, leading multiple agencies focused on helping individuals and families protect their health, financial security, and long-term stability. His combined experience in clinical care, business ownership, and financial protection gives him a unique, holistic perspective on the barriers patients face navigating medical, economic, and systemic challenges.
As Board Chair of Accessia Health, Mitch brings a mission-driven commitment to ensuring patients with chronic and rare conditions receive the support, access, and dignity they deserve. His clinical experience informs his understanding of the real-world financial, logistical, and emotional barriers patients encounter, while his business expertise strengthens the organization’s operational and strategic decision-making. He champions patient assistance programs that bridge gaps providers cannot fill—delivering financial support, education, and navigation services that make treatment accessible, sustainable, and less overwhelming.
Mitch is particularly excited about innovations that enhance patient support, including digital access tools, coordinated care platforms, and new therapies for rare conditions. Since joining the board, he has focused on expanding programs, improving accessibility, and ensuring patients experience meaningful impact and dignity throughout their care journey.
Outside of his board involvement and work, Mitch enjoys spending time with family, travel and community involvement, and continues to advocate for patients through both his professional work and board service. He holds his physical therapy licensure along with multiple insurance and financial services licenses. He is married and has a son and a daughter.
Anna Brown
As Executive Vice President of Marketing and Communications, Anna provides organization-wide leadership for marketing, communications, and brand strategy. She brings more than 17 years of nonprofit healthcare experience shaped by work in mental and behavioral health, hospice and palliative care, and national health philanthropy. Her background includes leadership roles at Hosparus Health, Seven Counties Services, and Community Health Charities, along with achievements that include award-winning digital and advertising campaigns, five organizational rebrands, and storytelling that elevates organizational visibility and drives measurable results.
In her role at Accessia Health, Anna provides organization-wide leadership for the marketing, communications, and brand strategy functions. She also serves as a trusted advisor and strategic partner, shaping organizational priorities, strengthening national brand presence, and advancing the organization’s mission through compelling storytelling, digital innovation, and strategic communication initiatives.
With a B.S. in Psychology from the University of Louisville, Anna understands audience behavior and develops communications that connect with diverse stakeholders. Based in Louisville, Kentucky, she previously served as Director of Marketing at Hosparus Health, one of the nation’s largest nonprofit hospice and palliative care organizations, where she oversaw brand management, reputation strategy, and marketing for multiple service lines.
Outside the office, she spends her time with her husband and three children. She is a devoted houseplant collector and enjoys weekends filled with reading, antiquing, and being outdoors.
Mike Holdren
Mike Holdren serves on the Accessia Health Board and brings extensive experience across healthcare technology, nonprofit organizations, and large payer and private equity-backed healthcare systems. After retiring from full time executive leadership in 2025, he transitioned into a board role, bringing deep operational experience and a clear governance perspective to the organization.
Mike’s connection to Accessia Health is both professional and personal. After consulting with the organization, he joined in a full-time capacity in January 2022 following a close friend’s diagnosis with a rare blood cancer and a projected $17,000 copay that put access to life saving treatment at risk. That experience reinforced the importance of patient financial assistance in a healthcare system where costs routinely outpace what many individuals and families can afford.
Throughout his career, he has seen how people with chronic and rare conditions most often fall through the cracks, particularly with delayed diagnoses, fragmented referrals, and limited coordination across multiple specialists. From his experience, siloed systems and reimbursement structures often leave patients and families responsible for managing complex care on their own.
As a board member, Mike focuses on the organization’s long-term strategy, measurable outcomes, and accountability. He brings a leadership approach shaped by years of working inside complex healthcare systems and translating that complexity into clarity.
Mike is particularly interested in how technology can strengthen patient assistance programs, making them more accessible, more efficient, and more patient‑centered than ever before. Responsible technology innovation would improve diagnostic accuracy, flag early warning signs, reduce unnecessary testing, and assist clinicians in recognizing patterns they might otherwise miss. He supports the use of data sharing, interoperability, and leveraging AI and other digital tools to create smarter technology and enable stronger collaboration across the healthcare ecosystem.
Outside of board service, Mike enjoys spending time with family; especially his grandchildren, two of whom were recently diagnosed with a rare pediatric condition that will require lifelong care. He hopes to leverage his time and technology understanding to assist his daughter and son-in-law with research and treatment options. He is also involved with the American Cancer Society and supports several local animal welfare organizations, including SPCAs in Richmond, VA and Newport New as well as Angels of Assisi.
Jennifer Noonan, MSN, RN
Jennifer Noonan is a dedicated healthcare professional who joined Accessia Health as the clinical program director in April 2021, bringing with 25+ years of clinical nursing experience. Her commitment and expertise quickly led to a promotion to senior director of clinical programs and compliance. With a rich background in clinical practice and management across diverse healthcare settings, Jennifer possesses a deep understanding of program design and the delivery of services within highly regulated environments.
As Vice President of Clinical Strategy and Patient Engagement at Accessia Health, she brings clarity and compassion to the complex landscape of rare and chronic disease support, developing patient programs, building national partnerships, and amplifying the patient voice.
Jennifer’s career began in the fast-paced emergency department of St. Mary and Elizabeth Hospital in Louisville, Kentucky, where she spent 17 years in leadership roles and contributed to EMR development and enhancements. Her passion for healthcare technology and innovation continued with her instrumental role in the clinical development, training, and implementation of Cerner within the Jewish Health System in Louisville. In 2014, she transitioned into hospice and palliative care, where she held leadership positions leading care delivery for both adult and pediatric patients.
Her academic journey includes an associate degree in nursing from Kentucky State University, a bachelor’s degree in nursing from Western Governors University, and a master’s degree in nursing informatics with a focus on data analytics, also from Western Governors University. Jennifer is board member for the National Association of Specialty Pharmacy.
Outside of her professional life, she is devoted to her family life, married to her husband Sean, and a proud parent of four teenagers. When she’s not spending time with her family and two rescue dogs, Jennifer indulges in her passion for martial arts, practicing taekwondo and judo. She also enjoys hiking and exploring new destinations through travel.
Email Jennifer Here

Ashley Lee
Ashley Lee serves as Director of Strategic Initiatives at Accessia Health, where she leads and coordinates cross-functional initiatives that advance the organization’s strategic priorities and strengthen its mission impact. In this role, she ensures seamless alignment between strategy and execution, driving collaboration across teams to support both Accessia Health and the Accessia Health Foundation in achieving their long-term goals.
Since joining Accessia Health in 2016, Ashley has held a series of progressively responsible roles, including Executive Assistant, Director of Development and Engagement, and Executive Project Manager, which reflect her steady growth as a mission-driven leader. Her career blends expertise in strategic planning, organizational effectiveness, and project management with a deep commitment to improving access to care for individuals living with rare and chronic illnesses.
A native Virginian, Ashley earned her A.A. from Richard Bland College of William & Mary and pursued B.A. studies at Virginia Commonwealth University. She and her husband live just outside Richmond, Virginia, where they enjoy spending time with their daughter, exploring the city’s vibrant neighborhoods and restaurants, and visiting beaches along the East Coast.
Lamont Brown, MBA
Lamont Brown serves as Executive Vice President of Finance & Administration at Accessia Health. His tenure with the organization began in 2008 in the role of staff accountant. Since then, he has held several leadership roles within the organization, guiding the nonprofit through key financial decisions, operational shifts, and infrastructure improvements. His career is marked by a commitment to fiscal integrity and operational transparency, two principles he brings to every strategic conversation.
In his current role, Lamont is responsible for the safeguarding and stewardship of company assets including financial, physical (fixed assets), and human capital. Under his leadership, the organization has strengthened its financial health and operational efficiency to better support patient access and growth.
Prior to joining Accessia Health, Lamont built a successful career in banking and financial services, holding officer roles across mortgage lending, commercial credit, and private client services. This experience equipped him with a strong foundation in risk management and a nuanced understanding of how financial systems can best serve mission-driven organizations.
A native of Richmond, VA, Lamont holds a B.S. in Business Administration from Old Dominion University, double majoring in Accounting and Economics. He further invested in his education by earning an MBA from Longwood University, with a dual emphasis in Economics and Data Analytics.
Outside the office, Lamont has served in various leadership roles within his church and fraternity and has volunteered with youth sports programs across his community. He’s an avid video gamer, enjoys music and fitness, and values time spent with his wife and two children.
Tiara Green, MSEd
Tiara was appointed president of Accessia Health in April 2024 and brings more than 20 years of experience in the public health and nonprofit sectors to the role. Prior to her appointment, she served in an interim leadership capacity beginning in June 2023, building on nearly a decade of service with the organization.
Throughout her tenure at Accessia Health, Tiara has held several leadership roles, including senior vice president of programs and policy. In that role, she led strategic development and health equity initiatives while streamlining operational processes to support growth and sustainability. As president, she is focused on strengthening the organization’s impact model, expanding and refining disease funds, and ensuring programs respond to the real financial and access challenges faced by patients living with rare and chronic conditions.
Under Tiara’s leadership, Accessia Health has experienced measurable organizational growth and operational advancement, including expanded patient assistance offerings and increased reach nationwide. She has also strengthened the organization’s leadership structure and helped formalize patient and clinical input into program design, reinforcing Accessia Health’s commitment to equity, accountability, and patient centered care.
Tiara is a hands-on leader who prioritizes organizational development and invests in building strong, capable teams. She is deeply committed to mentoring emerging professionals and expanding leadership capacity across the organization. Her experience and institutional knowledge have also supported the continued growth of Accessia Health’s educational resources for patients and families.
In addition to her work at Accessia Health, Tiara is the co-founder of the Liberated Arts Foundation, a nonprofit dedicated to enriching communities through the arts. The foundation supports art education and nonprofit organizations focused on health and education through creative programming and community-based events.
Tiara earned her Bachelor of Science degree from Virginia Commonwealth University in Richmond, Virginia, and her Master of Science in Education from Virginia Polytechnic Institute and State University, with a focus on community health and health promotion. She was recognized by Becker’s Hospital Review as a Top Black Healthcare Leaders to Know in 2024 and is a member of The Virginia Council of CEOs, Healthcare Businesswomen’s Association, Chief, and the Forbes Nonprofit Council.
Outside of work, Tiara is actively engaged in local philanthropic efforts and enjoys international travel and spending time with her husband and their two sons.
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Financial Assistance
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Multifocal Motor Neuropathy: Is There Hope?
August 9, 2021 — Multifocal motor neuropathy (MMN) is a rare disease affecting the body’s motor nerves and occurs in…
Gaucher Disease: Diagnosis, Treatment, and Stories
June 23, 2021 — Receiving a Gaucher disease diagnosis can be overwhelming. Gaucher can have many different symptoms, meaning there…
How to Support Someone with Chronic Pain
March 12, 2021 — Chronic pain is a constant, ongoing battle, and one of the most challenging aspects can be…
Living with Hemophilia: There’s Always Hope
October 5, 2020 — For so many in the chronic illness community, there is something that keeps us going: Inspiration.…
Living with Sickle Cell Disease
September 14, 2020 — Sickle cell disease, or sickle cell anemia, affects thousands of people around the world. September is National…