A dedicated leader at Accessia Health since 2015, Kristin began as a Patient Services Representative and progressed to Director of Operations, exemplifying her outstanding leadership skills.
Beyond managing programs, supporting callers, and overseeing operations, Kristin is driven by a deep commitment to helping others. Her academic foundation in Biomedical Engineering from Virginia Commonwealth University adds a unique perspective to her role, underscoring her holistic approach.
In both her professional and personal life, Kristin’s unwavering commitment to aiding others shines through, making her a compassionate and effective leader. When not working, she enjoys spending quality time with her husband and two boys.
November 2023 Newsletter
Click here to view the November 2023 newsletter
I am currently on assistance, do I have to reapply at the beginning of the year?
At this time, Accessia Health only requests re-enrollment information every two (2) years based on your eligibility review date. There is not need to reenroll at the beginning of the year. If you are unsure of your review date, you can locate this information in your patient portal or by calling 800-366-7741 and using our automated system.
October 2023 Newletter
Click here to view the October 2023 newsletter.
Ready for Open Enrollment? Tips for Taking Control of Your Healthcare
October 27, 2023 – Open Enrollment season is here for 2024 coverage and for many, navigating the complexities of healthcare…
When will I receive information about my assistance in 2024?
Notification is only sent to those individuals whose programs will have a change in assistance amount in 2024.
If you did not receive a letter in the mail or through your patient portal, the annual assistance amount for your program may not have changed.
We encourage you to visit the patient programs page of our website to see if your program notes any upcoming changes. You can also send us a message through your patient portal account if you have questions about your assistance.
September 2023 Newsletter
Click here to view our September 2023 newsletter.
Accessia Health’s Jennifer Noonan joins National Association of Specialty Pharmacy (NASP) Board
September 25, 2023 – We’re thrilled to announce that our very own Jennifer Noonan has been appointed to the National…
Jenn brings their deep understanding of the complexities and nuances within the Medicare Advantage & Value Based Care landscape to their work at DUOS, where they lead business development, go-to-market strategy, and marketing. By leveraging data-driven insights and market intelligence, they spearhead the development of tailored products and services that cater to the unique needs of Medicare Advantage plans and deliver unparalleled value to clients and beneficiaries alike.
As a military veteran, Jenn brings leadership and vision to diverse audiences, and offers a unique perspective within start-ups and high-growth stage companies: previous leadership roles include FarmboxRx, Excelera Health and NationsBenefits. With a passion for organizational mission and values, as well as the unique competitive advantage of establishing a strong culture, Jenn works with all departments to streamline processes and programs that integrate the member experience into every aspect of the business.
Beyond their role at DUOS, Jenn actively contributes to the industry’s progress as a thought leader leveraging expertise and advocacy for innovative healthcare practices to enhance healthcare accessibility and quality.
August 2023 Newsletter
Click here to view the August 2023 newsletter.
Share Your Story
Recognizing Chronic Disease Day
July 10, 2023 – Jennifer Noonan, MSN, RN Sr Director Clinical Programs & Compliance, Accessia Health – Today, we’re recognizing…
Office of Inspector General releases Accessia Health from Integrity Agreement
Successful release is a key milestone in a multi-year organizational transformation RICHMOND, Va. – Accessia Health, a national nonprofit patient…
How do I know where my income falls within the Federal Poverty Limits (FPL)?
If you are unsure where your income falls according to Federal Poverty Limits (FPL), click here to view Accessia Health’s guidelines.
Asembia Summit 2023: Patient Assistance is not one-size-fits-all.
May 22, 2023 – Dave Griffiths Vice President Development Accessia Health – Earlier this month, I joined thousands of the…
Changing the Landscape of Patient Care: Your Assistance, Your Choice
Jennifer Noonan, MSN, RN Sr Director Clinical Programs & Compliance, Accessia Health As senior director of clinical programs and compliance…
What do you cover besides medications and insurance premiums?
Other medical expenses such as costs related to symptom management, durable medical equipment and infusion services may be covered.
**Please contact Accessia Health at 1-800-366-7741 for any questions related to medical expenses coverage as we are reviewing and updating our covered services at this time.
Accessia Health provides financial assistance for:
- health insurance premiums
- medication copayments
- travel (limited to a max assistance of $500 per year)
- other approved essential medical expenses
Accessia Health Announces MedicoCX as National Supporter of One Breath Asthma Raise
National Asthma Raise will help to eradicate asthma in treatment deserts RICHMOND, Va. (April 27, 2023) – To kick off…
Accessia Health, Burnalong Partner to Bring Wellness Classes to Patients and Community
First 500 patients eligible for free account; wider community eligible for discounted membership RICHMOND, Va. (April 19, 2023) – Accessia…
Your Assistance. Your Choice.
Here for Good
Accessia Health Receives Grant for Indiana Oral Healthcare Assistance Program
Program will work with healthcare specialists to identify patients with critical oral healthcare needs Midlothian, VA (February 1, 2023) –…
Caitlin Donovan is the Global Head of Uber Health. She joins Uber most recently from MyOrthos, an Orthodontic Services Organization, where she served as Chief Operating Officer. Prior to that, Caitlin developed her knack for tackling obstacles to patient care as Chief Operating Officer of Circulation and Executive Vice President of Operations at LogistiCare (now ModivCare), specialty benefit managers in the non-emergency medical transportation space. She also served as the Vice President of Operations at CareCentrix with a focus on home health and post-acute care. Early in her career, she worked in finance as an investor at Bain Capital and as a member of the internal consulting group at Summit Partners. She earned her bachelor’s degree in Economics from Harvard University and lives in Dover, Massachusetts with her husband and two boys.
Program Status Opt-In
How Lori Is Giving Back with Fabry
December 8, 2022 — Before she retired, Lori was a lab technician. Today, she spends retirement enjoying her family and…
4 Ways to Prioritize Mental Health During the Winter Season
December 2, 2022 — Winter is here, and with it comes a myriad of celebrations, feasts, and gatherings. It also…
Finding Hope with Chronic Myeloid Leukemia
November 29, 2022 — Glen has Chronic Myeloid Leukemia (CML), but he doesn’t let that diagnosis hold him back and…
My Kids Have a Mom Because I Have Access to Medicine
November 29, 2022 — “Accessia Health has made such a difference in the lives of my family, not just the…
Cathy’s Patient Story Managing HAE, Lupus, And MS
November 29, 2022 — Cathy has lived for 62 years with Hereditary Angioedema, and her husband Duane lives with both…
COPD: Symptoms, Diagnosis, Treatment & Assistance
November 28,2022 — Breathe in… breathe out. Most of life begins with breath. In fact, we tend to take something that…
What were the annual assistance amounts for 2023?
Please visit your patient portal to learn more about how much assistance you utilized in 2023 and how it compares to the amount you will receive in 2024.
If I utilize all my funding before the end of the calendar year, can I request additional funding from Accessia Health?
The maximum assistance amounts are determined on an annual basis. If your assistance amount is utilized before the end of the calendar year, we are unable to offer additional assistance in that year.
We encourage you to reach out to your provider’s office or pharmacy to discuss any additional resources. You can also find resources on the patient programs page.
I did not utilize all my assistance from 2023, will it carry over into 2024?
Assistance from 2023 does not carry over to 2024.
Your assistance amount will reset on January 1, 2024.
Please visit the patient program page to see if any changes to the total assistance amount are noted for your 2024 assistance.
Why has my amount of assistance changed?
Accessia Health relies on the generosity of donors to fund our programs, so we can then support our patients. Funding amounts are carefully reviewed each year to determine how much assistance we can offer to reach as many patients as possible.
Living with GIST
November 17, 2022 — Living with a chronic condition or disability is hard enough, then there are the never-ending medical…
Parenting a Child with a Chronic Condition
October 28, 2022 — Liam’s first bleed was in daycare when he fell on the playground and hit his…
Give Back, Give Hope
DEI Calendar for October
October 1, 2022 — Each month, our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. For…
OLD- Donate Today
The Effects of Sickle Cell Disease and How Accessia Health Can Help
September 21, 2022 — Imagine you’re an expecting parent. You’re so excited for the little bundle of joy growing and…
Donor Thank You
DEI Calendar for September
September 1, 2022 — Our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. This month, we…
Lung Cancer and The Effect of Patient Assistance
August 25, 2022 — “It’s the best thing that could have happened… All of a sudden your life is changed…
Contact Us Form Thank You
Share Your Story Thank You
Spinal Muscular Atrophy and How We Can Help
August 3, 2022 — Meet Stella. At three weeks old, Stella was diagnosed with Type 1 Spinal Muscular Atrophy. Her…
DEI Calendar for August
August 1, 2022 — Our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. This month, we…
Amplify Your Voice, Control Your Care
Alzheimer’s Disease, Brain Awareness, and How Accessia Health Can Help
July 11, 2022 — Our minds are beautiful, unique things. They help us remember birthdays and calculate math equations; they…
DEI Calendar for July
July 1, 2022 Our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. This month, we recognize…
Policy + Advocacy News for July
July 1, 2022 Accessia Health monitors American health policy updates at the state and federal levels in order to inform…
Inherited Retinal Dystrophies And Finding Help
Advocacy / Policy
Coverage important terms
What is an EOB?
Health Insurance Card: A quick look
What is a special open enrollment period (SEP)?
How long do I have to submit claims?
Claims must be submitted within 4 months from the date of service to be considered for payment.
How are assistance payments made?
For copayment assistance with your FDA approved and indicated medications for the program diagnosis, an Accessia Health pharmacy benefit card is mailed to you upon approval. To request another copy, call us at (800) 366-7741. In addition to your Accessia Health ID number, below is the information that is on your pharmacy benefit card and needed for your pharmacy to process a claim.
Click here to view a list of Group Codes by Program.
For all other assistance, a payment card will be provided for you to pay eligible vendors and/or providers directly. If you are unable to use your payment card, we may be able to reimburse you or pay the vendor directly via check.
I may not need to use my assistance very often. What should I do?
If Accessia Health has not made a payment on your behalf in four (4) months, your assistance will close. Once your assistance closes, you will need to reapply.
How do I obtain my remaining amount of assistance?
You may view pay history and remaining assistance amount through your patient portal account. This information may also be available by speaking with a representative at (800) 366-7741.
Do I have to do anything to keep my assistance active?
Accessia Health periodically reviews each patients’ assistance to verify that eligibility criteria is still met. The review timeframe may vary by program. Notification will be sent to the patient 30 days prior to the due date.*
*Any changes to address, household income and/or health insurance should be immediately reported to Accessia Health.
I submitted my application and required documentation. When will I know if I am approved?
We will send a determination of patient eligibility via postal mail or patient portal account once documentation has been reviewed.
How can I check the status of my application?
You may check the status of your application(s) through the patient portal or speak with a representative at 1-800-366-7741.
How can I submit my documents?
Submit documents via:
What are application requirements?
- Log into your Patient Portal account to upload
- Email: email@example.com
- Fax: 804-744-9388
- Mail: PO Box 5930 Midlothian, VA 23112
Patients must meet financial and insurance requirements as well as have an eligible diagnosis. Documentation may be requested to confirm any of these requirements.
How can I apply for assistance?
Ways to apply:
Do you have to be a US citizen to apply?
To be eligible for assistance, you must legally reside in the US or one its territories and receive treatment from a US provider.
Is there a time limit to submit claims to Accessia Health?
Accessia Health has a 4-month timely filing limit for eligible claims or payments. Claims must be received within 4 months of the eligible date of service to be considered for payment.
Why won’t you assist my patient with their medication cost?
Accessia Health provides copay assistance for eligible patients if the treatment prescribed by their physician is FDA approved and indicated for the program diagnosis.
How do I submit claims for my patient?
Pharmacy claims may be submitted electronically for approved patients. Pharmacies must be contracted with our PBM vendor to submit electronic claims for pharmacy billing of eligible medication copays. Some helpful billing information is below.
Rx BIN: 610020
How do I obtain the patient’s Accessia Health ID number?
Click here to view a list of Group Codes by Program
If the pharmacy or provider has a date of service(s) that they wish to submit to Accessia Health, they may obtain the ID number from the patient.
How can I confirm the start date for my patient’s Accessia Health assistance?
Accessia Health may only provide very limited information to the pharmacy or provider. Correspondence is sent to the patient once an eligibility determination has been made.
How will I know if my patient has been approved or denied?
Correspondence is sent to the patient once an eligibility determination has been made. The patient may contact Accessia Health to speak with a representative.
What information is needed to apply for my patient?
How can I apply for my patient?
- Patient’s first and last name
- Patient’s date of birth
- Demographic information
- Health Insurance details
- Estimated household income
- Number of household dependents
Applications may be submitted here
How can I submit required documents on behalf of my patient?
I am a new patient and would like to apply for assistance. What should I do?
- Upload documents here
- Fax: 804-744-9388
- Mailing Address: PO Box 5930 Midlothian VA 23112
If you are a new patient seeking assistance, please visit www.accessiahealth.org to view our current programs and/or apply for assistance.
Do I need to reapply for assistance with Accessia Health now that you changed your name?
No, you do not need to reapply for assistance. However, as you know, we periodically review all patient’s eligibility to ensure that you continue to qualify for assistance. If you receive a letter which requests documentation to determine continued eligibility, it is very important to submit all requested information by the provided deadline. Failure to do so will result in assistance closure and a new application would be needed.
After a brief stint in minor league baseball, Mark’s career started as a database programmer with Choicepoint/LexisNexis. He was convinced by an acquaintance to move into consulting at Ariba (since purchased by SAP) where he found a successful niche implementing spend management software. Rising through the consulting ranks, including a brief detour at IBM, he made his way into management. Since then he has held roles across SAP’s procurement software division, including Customer Success, Solution Management, Marketing, and Product Management. He recently spent two years in Japan working on a comprehensive regional improvement program before returning to the US and the Product organization.
Mark acquired his BS in Psychology from the College of William and Mary in Virginia. He currently lives in San Diego, CA where he enjoys spending as much time outside as possible.
Jessika is the Agile Delivery Lead at Capital One. She is an experienced IT professional with a unique combination of technical and managerial experience, business development, design, and production support to lead the delivery and implementation of mission-critical software systems. Prior to Capital One, Jessika worked for McKesson, a medical distribution company, for over 12 years managing document management software development.
Lee served as Chair of the Accessia Health Foundation Board in 2021 before joining the Accessia Health Board. He is the area Vice President of Sales with BioTelemetry Healthcare with over 10 years of experience in effective medical-based sales management. Lee is an entrepreneurial leader who develops high-performance sales teams and creates winning sales organizations with heightened senses of urgency and accountability. Prior to his time at BioTelemtry, he was the National Sales Director for LipoScience and Regional Sales Manager for Hologic, Inc.
Lud Kimbrough is the Managing Partner at Fahrenheit Advisors. Lud has provided financial, strategic, and executive management expertise to publicly held, private equity-backed, and startup companies. He is adept at balancing human capital, strategy and analytics, and shareholder and lender interests by serving as a leader and advisor to dozens of middle market companies during periods of turbulence, turnaround, and dramatic growth. With more than 35 years of entrepreneurial and consulting experience, Lud has built strong teams by developing a clear vision and strategies, embracing new technologies, and understanding risk tolerance.
Throughout his career, Lud has served in various roles including president, CEO, and managing director. He has led or advised businesses in diverse industry sectors including marketing, aerospace tooling, cryogenics equipment, outdoor advertising, and cable television. He has guided businesses in exiting or outsourcing non-core segments, stabilizing workforces, transitioning family owned businesses to professional leadership, and leading business spin-off and sales processes in a variety of manufacturing industries.
Brian L Fink, JD
Brian Fink currently serves as President & CEO of an Ohio-based manufacturing company. He holds a Master’s in Business Administration and a Juris Doctor from the University of Akron. Brian is admitted to practice in law in the State of Ohio. He has over 30 years of diverse experience including service on profit and nonprofit boards, small business ownership, executive and operational leadership, and international business development. Brian enjoys spending time with his family, traveling, and working on his farm. Mr. Fink was introduced to Accessia Health through board Member, Russ Phillips.
Brian received a BS degree in Marketing from Louisiana State University and served as Senior Vice President of Marketing, Public Affairs and Development for LCMC Health, a five-hospital non-profit New Orleans area healthcare system, until his retirement. He is actively involved with St. Joseph Benedictine Abbey & Seminary College, located in southern Louisiana where he has served on the seminary board, chairman of the long-range strategic planning committee, and was selected as the college’s 2016 alumnus of the Year. Brian is a former board member and past president of Ronald McDonald House Charities of South Louisiana, Inc., and serves as vice-chair on the boards of both the Miracle League of Greater New Orleans and North Shore, which are not-for-profit organizations that provide the opportunity for kids with special needs to play baseball and other sports in organized leagues.
Russell E. Phillips Jr., CPA, CVA, MAFF
Brian is married and has a married daughter, two married sons, and eight grandchildren.
Russ is the Managing Partner of The Phillips Organization, a Certified Public Accounting and Consulting Firm located in Canton, OH. He earned his B.A. degree in Accounting from Walsh University and obtained his Certified Public Accountant’s license from the Accountancy Board of Ohio. He also holds the credentials of Certified Valuation Analysis (CVA) and Master Analyst in Financial Forensics (MAFF), with a specialty in bankruptcy, insolvency, and reorganizations accredited by the National Association of Certified Valuators and Analysts (NACVA).
Russ has been married to his wife Tammy since 1982 and has two adult children. He currently serves on several local and national not-for-profit organizations and is an advocate for individuals with chronic health conditions.
Mr. Mula received his Bachelor of Science degree in Allied Health School of Physical Therapy from Louisiana State University Medical Center. He has served as a staff physical therapist at Baton Rouge Medical Center and currently owns his own physical therapy practice. In addition to Mr. Mula serving as our board member, he also is a member of the American Physical Therapy Association, APTA Geriatrics Division, and APTA Health Care Administration Division. He is married and has a son and a daughter.
Anna joins Accessia Health with over 16 years of nonprofit healthcare experience. She has won numerous awards for executing impactful digital and print brand campaigns and has led 5 organizational rebrands throughout her career.
In her role at Accessia Health, Anna is responsible for the strategic implementation of omnichannel marketing and communication efforts, positioning the nonprofit as the premier patient assistance organization in the nation. Her approach reflects a commitment to showcasing the integral role of marketing and communications in every aspect of the business.
“Nothing is linear in marketing, it’s often a complicated matrix of current processes and new idea building, and seeing all that as one big picture that moves a company forward is what excites me about the industry.”
Based in Louisville, KY, Anna previously served as Director of Marketing & Communications at Hosparus Health, the nation’s 19th largest nonprofit hospice and palliative care organization in the US and serving Kentucky and Indiana. In this role, she was responsible for the brand reputation and marketing strategy for multiple brands and service lines.
When not working, Anna spends her time with her husband and 3 kids. She is a houseplant enthusiast and loves weekends spent reading books and being outside.
As Chief Information Officer, Mike is charged with the creation of strategic IT initiatives that align with the Accessia Health mission and long-term goals.
Mike has extensive experience in all aspects of healthcare technology. He has recently provided CIO leadership and consulting services to a number of nonprofit organizations. Mike was with Marlin Private Equity as a Technology and Operations Executive, providing due diligence and CIO leadership for Marlin healthcare technology acquisitions. Mike has also served in roles as the Executive Director of Software Program Delivery for Aetna Healthcare, Vice President of Applications Development for Coventry Healthcare, CIO of First Health Services, and VP of Application Development for Anthem Blue Cross Blue Shield of Virginia.
Jennifer Noonan, MSN, RN
Jennifer Noonan is a dedicated healthcare professional who joined Accessia Health as the Clinical Program Director in April 2021, bringing with her over 25 years of clinical nursing experience. Her commitment and expertise quickly led to her promotion as the Senior Director of Clinical Programs and Compliance. With a rich background in clinical practice and management across diverse healthcare settings, Jennifer possesses a deep understanding of program design and the delivery of services within highly regulated environments.
Jennifer’s career began in the fast-paced emergency department of St. Mary and Elizabeth Hospital in Louisville, KY, where she spent 17 years, assuming leadership roles and contributing to EMR development and enhancements. Her passion for healthcare technology and innovation continued with her instrumental role in the clinical development, training, and implementation of Cerner within the Jewish Health System in Louisville. In 2014, Jennifer transitioned into hospice and palliative care, where she held leadership positions in the care of both adult and pediatric patients.
Her academic journey includes an associate degree in nursing from Kentucky State University, a bachelor’s degree in nursing from Western Governors University, and a master’s degree in nursing informatics with a focus on data analytics, also from Western Governors University. In September 2023, Jennifer was appointed to the Board of Directors for the National Association of Specialty Pharmacy (NASP), underscoring her industry expertise and leadership.
Outside of her professional life, she is a dedicated family person, married to her husband Sean, and a proud parent of four teenagers. When she’s not spending quality time with her family and two rescue dogs, Jennifer indulges in her passion for martial arts, practicing Taekwondo and judo. She also enjoys hiking and exploring new destinations through travel.
As Executive Project Manager, Ashley directs and integrates the activities of multiple projects within the Business Development, Operations, and Executive Departments ensuring that project efforts are cohesive, consistent, and effective in supporting Accessia Health (formerly Patient Services, Inc.) and the Accessia Health Foundation’s mission, goals, and strategic plan. Ashley joined the Accessia team in 2016 as Executive Assistant, then transitioned to Director of Development and Engagement in 2019. The Executive Project Manager role allows Ashley to go back to her career roots while continuing her passion for helping patients with rare and chronic illnesses.
Ashley received her A.A. from Richard Bland College of William & Mary in 2001 and went on to B.A. studies at Virginia Commonwealth University. As Virginia natives, Ashley and her husband reside just outside of the state capital where they spend time with their daughter enjoying the beautiful city of Richmond and the East Coast Beaches.
Lamont joined Accessia Health in 2008 as a staff Accountant to assist with financial services, audits, and managing the inventory reconciliations for our Free Product program at the time. Over his tenure, he has served in several leadership roles within the organization and was recently promoted to VP of Finance & Administration. Prior to Accessia Health, Lamont served as an officer in the banking and financial industry, where he also held leadership positions in Mortgage, Private Client Services, and Commercial Credit Services.
A Richmond native, Lamont earned his B.S. in Business Administration from Old Dominion University, double majoring in Accounting and Economics, while also completing an Internal Audit program endorsed by the Institute of Internal Auditors. Outside of Accessia Health, Lamont has also served in several leadership roles within his church and fraternity which are also dedicated to service and philanthropy. He also has volunteered with several youth sports organizations. In his spare time, Lamont is an avid video gamer and loves spending time with his wife and two kids.
Tiara Green, MSEd
Tiara joined Accessia Health in 2013 as a Program Manager assisting with the execution of patient programs. Since joining the organization, she has served as Director of Operations and VP of Operations overseeing call center operations and implementation of patient programs. In 2022, Tiara was promoted to SVP of Programs and Policy where she had strategic and imperative input in the design and execution of Accessia Health service lines and ancillary services. Most recently, Tiara was appointed as Accessia Health’s Interim CEO as the organization conducts a national search to find the ideal candidate for the CEO position. Her in-depth prior experiences include working with state health departments as well as national nonprofit organizations spanning a variety of focuses including health insurance enrollment diabetes sickle cell disease preconception health and overall wellness.
She is a hands-on leader dedicated to fostering organizational growth and coaching staff members to expand their leadership skills. Tiara’s visionary mindset and her decade of organizational knowledge have assisted Accessia Health in growing its health education offerings to patients. She earned her B.S. from Virginia Commonwealth University in Richmond VA and her MS.Ed. from Virginia Polytechnic Institute and State University focusing on community health and health promotion respectively. In her spare time, Tiara engages in philanthropic activities and spends time with her two sons and husband.
Dave Griffiths serves as Vice President of Development Patient Assistance Funds for Accessia Health, having joined the organization in November 2021. He is responsible for identifying, developing, and managing fundraising and strategic partnerships with large corporations to increase patient assistance opportunities in Accessia’s specific disease programs. He joins the organization after more than 20 years of working in the nonprofit industry combining his expertise in strategic corporate relations and alliance partnerships with fundraising and employee engagement for national and global nonprofits.
Originally from Dublin, Ireland, Dave has spent the last five years as a global partnership consultant for several European-based companies and international nonprofits. Outside of Accessia Health, Dave serves on the boards of several global volunteer organizations. He has also led strategic fundraising and partnership development training for many companies and nonprofit organizations, including the Resource Alliance U.K. and the U.S. Consulate General of Ireland office. Dave arrived in the US to play soccer at the University of Kentucky, where he not only earned his degree but met and married his wife, Brooke, a proud Brain Tumor Survivor. They have three children and live in Louisville, Kentucky.
DEI Calendar for June
June 1, 2022 Our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. This month, we recognize…
Policy + Advocacy News for June
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Circadian Rhythm Disorders And Patient Assistance
May 26, 2022 — Circadian Rhythm Disorders (CRD) are disruptions with your circadian rhythm, also known as your “internal body…
Accessia Health and MedicoCX Join Forces to Eradicate Asthma in Allergy Treatment Deserts
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The Connection Between Chronic Illness and Mental Health
April 29, 2022 — Imagine being diagnosed with a chronic illness. You’re sitting in an LED-lit doctor’s office as the…
Policy + Advocacy News for April
April 5, 2022 Accessia Health monitors American health policy updates at the state and federal levels in order to inform…
Primary Immune Deficiency Diseases Effect on the Immune System
March 28, 2022 — Imagine being sick several times in a year without much of a break in between. Now,…
Hemophilia and Where To Find Help
March 3, 2022 — Billy is a young boy with hemophilia, and in this video from the CDC, he answers…
Cardiomyopathy’s Impact on Patient Assistance
February 9, 2022 — Maurice Howerton was only 14 when he was first diagnosed with Hypertrophic Cardiomyopathy or HCM. Maurice often…
Hereditary Angioedema’s Affect On Patients
January 12, 2022 — Hereditary Angioedema (HAE) is a rare genetic condition that causes unexpected swelling, and it can happen in different parts of the body. The…
What is Lysosomal Acid Lipase Deficiency
November 23, 2021 — Lysosomal Acid Lipase Deficiency (LAL) is a rare, genetic condition that causes individuals to have buildup…
Kidney Stone Prevention and How To Get Involved
September 13, 2021 — A kidney stone is a hard, crystalline mineral material that is formed within the kidney or…
Lambert-Eaton Myasthenic Syndrome (LEMS) and Its Effect on Patients
August 24, 2021 — Lambert-Eaton Myasthenic Syndrome (LEMS) is an autoimmune disease that affects around 1,500 people worldwide. What is…
Multifocal Motor Neuropathy: Is There Hope?
August 9, 2021 — Multifocal motor neuropathy (MMN) is a rare disease affecting the body’s motor nerves and occurs in…
Gaucher Disease: Diagnosis, Treatment, and Stories
June 23, 2021 — Receiving a Gaucher disease diagnosis can be overwhelming. Gaucher can have many different symptoms, meaning there…
How to Support Someone with Chronic Pain
March 12, 2021 — Chronic pain is a constant, ongoing battle, and one of the most challenging aspects can be…
Living with Hemophilia: There’s Always Hope
October 5, 2020 — For so many in the chronic illness community, there is something that keeps us going: Inspiration.…
Living with Sickle Cell Disease
September 14, 2020 — Sickle cell disease, or sickle cell anemia, affects thousands of people around the world. September is National…