Advocacy / Policy

Those living with rare or chronic health conditions deserve unfettered and seamless access to care. Our goal is to protect and expand healthcare access for people with or without health insurance. We are the patient voice to educate lawmakers and decision-makers at the state and federal level about the growing need of improving the availability and affordability of healthcare.

Healthcare expenses have become so great that just having health insurance isn’t enough. Many families simply can’t afford the copays or cost sharing required to even go to the doctor. Many believe their insurance is to truly cover emergencies rather than routine healthcare needs. The nonprofit patient financial assistance provided by Accessia Health is the safety net, allowing patients and families to get the healthcare they need.

As the patient assistance pioneer, Accessia Health is uniquely positioned to provide valuable insight to policymakers into what works and what doesn’t to improve healthcare equity, quality, access, and outcomes.

Check back often as we’ll keep this page fresh with policy updates, requests for comments and other relevant information to meet our mission of improving healthcare for all people, regardless of their zip code.


Accessia Health Policy Positions

  • Support Medicare Reform Efforts
  • Oppose limiting independent, needs-based charitable patient assistance
  • Support patient-centered policy reform

Accessia Health views all policy decisions through a health equity lens, asking: Could this policy/bill have an inequitable impact on any population or community?

Accessia Health Policy Decisions consider the following:

  • Increasing Access to Care for Chronic/Rare Illness Patients
  • Increasing Health Equity and Address Social Determinants of Health


Chronic Disease in America

  • According to the CDC, 90% of the nation’s $3.8 trillion annual healthcare expenditures are for people with chronic conditions.[i]
  • Chronic disease is the US’s leading cause of death and disability.[ii]
  • 6 out of every 10 adults in the US have a chronic disease; 4 out of every 10 adults have two or more chronic conditions.
  • The leading chronic diseases in the US are heart disease, cancer, chronic lung disease, stroke, Alzheimer’s, diabetes, and chronic kidney disease.[iii]


[i] Health and Economic Costs of Chronic Diseases | CDC

[ii] Health and Economic Costs of Chronic Diseases | CDC

[iii] chronic-disease-H.pdf (cdc.gov)