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As we look back at this at this year, we reflect on the progress made in supporting those living with…
Click here to read our November 2024 newsletter
We recently hosted a two-part webinar series focused on the Inflation Reduction Act and its impact on Medicare. The sessions…
Robert brings 21 Years of experience actively managing operational compliance issues while strategically focused on pending legislation, emerging reimbursement trends, and future paradigm shifts. He has executive level experience with large healthcare systems, clinically integrated physician networks, accountable care organizations, physician practice management and consulting firms, and vertically integrated insurance companies
Most recently he was employed by a CMS Contractor to serve as the lead subject matter expert and compliance analyst for the ACO Realizing Equity, Access, and Community Health (REACH) Model.
“I believe that Accessia Health’s patient support programs, which go beyond copayment assistance and offer a holistic, inclusive, and outcomes-focused approach, are a perfect complement to the ACO REACH model and the transition to value-based care.”
He is a published legal analyst who has authored compliance manuals, web-based training, and a variety of news articles for Commerce Clearing House, Wolters Kluwer Health, American Health Lawyers Association, and the Society for Corporate Compliance Ethics.
Outside of work, Robert enjoys spending time with his family and supporting charitable organizations focused on Autism and Child Healthcare,
Specialty pharmacy plays a critical role in addressing the complex needs of patients with rare and chronic conditions. Jennifer Noonan,…
Coming in 2025 and 2026, there will be some significant changes to Medicare Part D that may affect you. While…
Midlothian, Va. (October 21, 2024) – Accessia Health, a national nonprofit 501(c)(3) patient assistance organization, is now offering financial assistance…
Accessia Health hosted the Chief of Staff at the Centers for Medicare and Medicaid Services (CMS), Kristi Martin, for part…
Dave Griffiths, VP, Development – The 2024 Healthcare Advocate Summit (HAS) in Las Vegas brought together a passionate group of healthcare…
Midlothian, Va. (September 17, 2024) – Accessia Health, a national nonprofit 501(c)(3) patient assistance organization, announces its membership with the…
Carrie Choate is a 42-year-old pediatric physical therapist dedicated to helping children with special needs and rare diseases. She is…
Program improves access to vital services for those in Michigan, Ohio and Indiana. Midlothian, VA (August 28, 2024) – Accessia…
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Midlothian, Va. (August 19, 2024) – Accessia Health, a national nonprofit 501(c)(3) patient assistance organization, is now offering financial assistance…
July is Chronic Disease Month, dedicated to highlighting the importance of comprehensive care for individuals living with chronic conditions. In…
As we head in to the second half of the year, several significant healthcare conferences have taken place, each offering…
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Americans today have an astonishing $220 billion in medical debt with about 3 million people owing more than $10,000 each.…
Progress, Potential, and Possibilities host, Ira Pastor, interviews Accessia Health President, Tiara Green, to learn more about how the organization…
Click here to view the May 2024 newsletter.
In a recent interview with the Pharmacy Podcast Network, during the Asembia Specialty Pharmacy Summit (AXS24), Accessia Health shares their…
Forbes Nonprofit Council is an invitation-only community for chief executives in successful nonprofit organizations. Midlothian, Va. (May 15, 2024) —…
We are thrilled to announce the launch of our updated application process and patient portal interface! These upgrades are designed…
Midlothian, VA — Accessia Health, a national nonprofit 501(c)(3) patient assistance organization that supports individuals living with rare or chronic…
As head of strategy for Accessia Health, Craig brings deep expertise in strategic planning, innovation and growth, and a wealth of experience across healthcare, biopharmaceutical, technology, and related markets. He has collaborated closely with industry leaders, providers, patient groups, and government institutions throughout his career, with a particular focus on rare diseases, neurology, oncology and precision medicine.
In 2018, Craig founded Rithm Health, which provides executive services, strategy, business development, partnering, and communications counsel for growth companies in the biotech and health technology sectors as well as non-profits. His leadership roles have spanned the globe, including positions as a global principal for biotech and health technology with Ogilvy Consulting in Cambridge and New York, and as CEO of Ogilvy’s Feinstein Kean Healthcare, a specialized consultancy focused on biotech and technology, and other leadership positions in health and life science-focused businesses in Cambridge, Washington, DC, New York, and Brussels.
A frequent commentator and panelist, Craig is passionate about identifying and addressing key issues impacting innovation in rare diseases and other areas of high unmet need. His patient-focused perspective, vision and commitment to driving positive change make him an asset to the Accessia Health team.
Accomplished leader to drive operational growth and expand access to care. Midlothian, Va. (April 24, 2024) – Accessia Health, a…
Click here to view the April 2024 newsletter.
Click here to view the March 2024 newsletter.
Allergies and asthma are some of the most common chronic diseases affecting Americans today. If you don’t have allergies or…
Click here to view our February 2024 newsletter.
Living with a chronic health condition can be challenging, especially when it’s rare, like Fabry disease. Affecting up to 1…
Click here to read our January 2024 newsletter.
Click here to read our December newsletter.
The holidays can be stressful for nearly everyone. Family and work gatherings abound, the days are colder and shorter, and…
Before she retired, Lori was a lab technician. Today, she spends retirement enjoying her family and grandchildren and giving back…
A Q&A with Accessia Health Patient Advisory Council Member Aaron Mishoe Millions of Americans serve as unpaid caregivers for their…
A dedicated leader at Accessia Health since 2015, Kristin began as a Patient Services Representative and progressed to Director of Operations, exemplifying her outstanding leadership skills.
Beyond managing programs, supporting callers, and overseeing operations, Kristin is driven by a deep commitment to helping others. Her academic foundation in Biomedical Engineering from Virginia Commonwealth University adds a unique perspective to her role, underscoring her holistic approach.
In both her professional and personal life, Kristin’s unwavering commitment to aiding others shines through, making her a compassionate and effective leader. When not working, she enjoys spending quality time with her husband and two boys.
Click here to view the November 2023 newsletter
At this time, Accessia Health only requests re-enrollment information every two (2) years based on your eligibility review date. There is not need to reenroll at the beginning of the year. If you are unsure of your review date, you can locate this information in your patient portal or by calling 800-366-7741 and using our automated system.
Click here to view the October 2023 newsletter.
Open Enrollment season is here for 2024 coverage and for many, navigating the complexities of healthcare plans, coverage options, and…
Assistance amounts have been finalized for 2025 and communications have been sent to those that have been impacted by any changes.
If you did not receive a letter in the mail or through your patient portal, the annual assistance amount for your program may not have changed.
Beginning January 1, 2025, all 2025 assistance amounts can be found on the patient programs page of our website. You can also send us a message through your patient portal account if you have questions about your assistance.
Click here to view our September 2023 newsletter.
September 25, 2023 – We’re thrilled to announce that our very own Jennifer Noonan has been appointed to the National…
Jenn brings their deep understanding of the complexities and nuances within the Medicare Advantage & Value Based Care landscape to their work at DUOS, where they lead business development, go-to-market strategy, and marketing. By leveraging data-driven insights and market intelligence, they spearhead the development of tailored products and services that cater to the unique needs of Medicare Advantage plans and deliver unparalleled value to clients and beneficiaries alike.
As a military veteran, Jenn brings leadership and vision to diverse audiences, and offers a unique perspective within start-ups and high-growth stage companies: previous leadership roles include FarmboxRx, Excelera Health and NationsBenefits. With a passion for organizational mission and values, as well as the unique competitive advantage of establishing a strong culture, Jenn works with all departments to streamline processes and programs that integrate the member experience into every aspect of the business.
Beyond their role at DUOS, Jenn actively contributes to the industry’s progress as a thought leader leveraging expertise and advocacy for innovative healthcare practices to enhance healthcare accessibility and quality.
Click here to view the August 2023 newsletter.
Jennifer Noonan, MSN, RN, Sr Director Clinical Programs & Compliance, Accessia Health – Today, we’re recognizing Chronic Disease Day. Living with…
Successful release is a key milestone in a multi-year organizational transformation RICHMOND, Va. – Accessia Health, a national nonprofit patient…
If you are unsure where your income falls according to Federal Poverty Limits (FPL), click here to view Accessia Health’s guidelines.
You can also calculate your FPL using this calculator tool here.
May 22, 2023 – Dave Griffiths Vice President Development Accessia Health – Earlier this month, I joined thousands of the…
Jennifer Noonan, MSN, RN Senior Director, Clinical Programs and Compliance, Accessia Health (May 9, 2023) As senior director of clinical…
Accessia Health provides financial assistance for:
- health insurance premiums
- medication copayments
- travel (limited to a max assistance of $500 per year)
- other approved essential medical expenses**
**Coverage of items or services under Medical Expenses is determined at the sole discretion of Accessia Health; and is subject to change based on clinical correlation with covered diagnosis. Coverage of such items and services may not be appealed by any individual or company.
Questions related to specific items covered under Medical Expenses require clinical review for compliance purposes, and responses will be provided within 3-5 business days. Inquiries about coverage of medical expenses should be directed to assistance@accessiahealth.org.
UPDATE March, 4, 2024: Since original publication of this announcement, the Oral Health Program has been expanded and now serves…
Caitlin Donovan is the Global Head of Uber Health. She joins Uber most recently from MyOrthos, an Orthodontic Services Organization, where she served as Chief Operating Officer. Prior to that, Caitlin developed her knack for tackling obstacles to patient care as Chief Operating Officer of Circulation and Executive Vice President of Operations at LogistiCare (now ModivCare), specialty benefit managers in the non-emergency medical transportation space. She also served as the Vice President of Operations at CareCentrix with a focus on home health and post-acute care. Early in her career, she worked in finance as an investor at Bain Capital and as a member of the internal consulting group at Summit Partners. She earned her bachelor’s degree in Economics from Harvard University and lives in Dover, Massachusetts with her husband and two boys.
December 2, 2022 — Winter is here, and with it comes a myriad of celebrations, feasts, and gatherings. It also…
November 29, 2022 — Glen has Chronic Myeloid Leukemia (CML), but he doesn’t let that diagnosis hold him back and…
November 29, 2022 — “Accessia Health has made such a difference in the lives of my family, not just the…
November 29, 2022 — Cathy has lived for 62 years with Hereditary Angioedema, and her husband Duane lives with both…
November 28,2022 — Breathe in… breathe out. Most of life begins with breath. In fact, we tend to take something that…
Please visit your patient portal to learn more about how much assistance you utilized in 2023 and how it compares to the amount you will receive in 2024.
The maximum assistance amounts are determined on an annual basis. If your assistance amount is utilized before the end of the calendar year, we are unable to offer additional assistance in that year.
We encourage you to reach out to your provider’s office or pharmacy to discuss any additional resources. You can also find resources on the patient programs page.
Assistance from 2023 does not carry over to 2024.
Your assistance amount will reset on January 1, 2024.
Please visit the patient program page to see if any changes to the total assistance amount are noted for your 2024 assistance.
Accessia Health relies on the generosity of donors to fund our programs, so we can then support our patients. Funding amounts are carefully reviewed each year to determine how much assistance we can offer to reach as many patients as possible.
November 17, 2022 — Living with a chronic condition or disability is hard enough, then there are the never-ending medical…
October 28, 2022 — Liam’s first bleed was in daycare when he fell on the playground and hit his…
October 1, 2022 — Each month, our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. For…
September 21, 2022 — Imagine you’re an expecting parent. You’re so excited for the little bundle of joy growing and…
September 1, 2022 — Our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. This month, we…
August 25, 2022 — “It’s the best thing that could have happened… All of a sudden your life is changed…
August 3, 2022 — Meet Stella. At three weeks old, Stella was diagnosed with Type 1 Spinal Muscular Atrophy. Her…
August 1, 2022 — Our Diversity & Inclusion Committee compiles events highlighting the diversity of our communities. This month, we…
July 11, 2022 — Our minds are beautiful, unique things. They help us remember birthdays and calculate math equations; they…
Claims must be submitted within 4 months from the date of service to be considered for payment.
For copayment assistance with your FDA approved and indicated medications for the program diagnosis, an Accessia Health pharmacy benefit card is mailed to you upon approval. To request another copy, call us at (800) 366-7741. In addition to your Accessia Health ID number, below is the information that is on your pharmacy benefit card and needed for your pharmacy to process a claim.
Rx BIN:610020
PCN:PXXPDMI
Click here to view a list of Group Codes by Program.
For all other assistance, a payment card will be provided for you to pay eligible vendors and/or providers directly. If you are unable to use your payment card, we may be able to reimburse you or pay the vendor directly via check.
If Accessia Health has not made a payment on your behalf in four (4) months, your assistance will close. Once your assistance closes, you will need to reapply.
You may view pay history and remaining assistance amount through your patient portal account. This information may also be available by speaking with a representative at (800) 366-7741.
Accessia Health periodically reviews each patients’ assistance to verify that eligibility criteria is still met. The review timeframe may vary by program. Notification will be sent to the patient 30 days prior to the due date.*
*Any changes to address, household income and/or health insurance should be immediately reported to Accessia Health.
We will send a determination of patient eligibility via postal mail or patient portal account once documentation has been reviewed.
You may check the status of your application(s) through the patient portal or speak with a representative at 1-800-366-7741.
Submit documents via:
- Log into your Patient Portal account to upload
- Email: assistance@accessiahealth.org
- Fax: 804-744-9388
- Mail: PO Box 5930 Midlothian, VA 23112
Patients must meet financial and insurance requirements as well as have an eligible diagnosis. Documentation may be requested to confirm any of these requirements.
Ways to apply:
- Fill out our prescreen eligibility form
- Create a patient portal account
- Call to speak with a representative at (800) 366-7741
To be eligible for assistance, you must legally reside in the US or one its territories and receive treatment from a US provider.
Accessia Health has a 4-month timely filing limit for eligible claims or payments. Claims must be received within 4 months of the eligible date of service to be considered for payment.
Accessia Health provides copay assistance for eligible patients if the treatment prescribed by their physician is FDA approved and indicated for the program diagnosis.
Pharmacy claims may be submitted electronically for approved patients. Pharmacies must be contracted with our PBM vendor to submit electronic claims for pharmacy billing of eligible medication copays. Some helpful billing information is below.
Rx BIN: 610020
PCN: PXXPDMI
Click here to view a list of Group Codes by Program
If the pharmacy or provider has a date of service(s) that they wish to submit to Accessia Health, they may obtain the ID number from the patient.
Accessia Health may only provide very limited information to the pharmacy or provider. Correspondence is sent to the patient once an eligibility determination has been made.
Correspondence is sent to the patient once an eligibility determination has been made. The patient may contact Accessia Health to speak with a representative.
- Patient’s first and last name
- Patient’s date of birth
- Demographic information
- Health Insurance details
- Estimated household income
- Number of household dependents
Applications may be submitted here
- Fax: 804-744-9388
- Mailing Address: PO Box 5930 Midlothian VA 23112
- Email us at assistance@accessiahealth.org
If you are a new patient seeking assistance, please visit www.accessiahealth.org to view our current programs and/or apply for assistance.
No, you do not need to reapply for assistance. However, as you know, we periodically review all patient’s eligibility to ensure that you continue to qualify for assistance. If you receive a letter which requests documentation to determine continued eligibility, it is very important to submit all requested information by the provided deadline. Failure to do so will result in assistance closure and a new application would be needed.
After a brief stint in minor league baseball, Mark’s career started as a database programmer with Choicepoint/LexisNexis. He was convinced by an acquaintance to move into consulting at Ariba (since purchased by SAP) where he found a successful niche implementing spend management software. Rising through the consulting ranks, including a brief detour at IBM, he made his way into management. Since then he has held roles across SAP’s procurement software division, including Customer Success, Solution Management, Marketing, and Product Management. He recently spent two years in Japan working on a comprehensive regional improvement program before returning to the US and the Product organization.
Mark acquired his BS in Psychology from the College of William and Mary in Virginia. He currently lives in San Diego, CA where he enjoys spending as much time outside as possible.
Lee served as Chair of the Accessia Health Foundation Board in 2021 before joining the Accessia Health Board. He is the Head of Commercial with Element Science, Inc. with over 15 years of experience in effective medical-based sales management.
Lee is an entrepreneurial leader who develops high-performance sales teams and creates winning sales organizations with heightened senses of urgency and accountability. Prior to his time at Element Science, he was the Head of Sales for Philips BioTel Heart, National Sales Director for LipoScience, and Regional Sales Manager for Hologic, Inc.
Lud Kimbrough is the Managing Partner at Fahrenheit Advisors. Lud has provided financial, strategic, and executive management expertise to publicly held, private equity-backed, and startup companies. He is adept at balancing human capital, strategy and analytics, and shareholder and lender interests by serving as a leader and advisor to dozens of middle market companies during periods of turbulence, turnaround, and dramatic growth. With more than 35 years of entrepreneurial and consulting experience, Lud has built strong teams by developing a clear vision and strategies, embracing new technologies, and understanding risk tolerance.
Throughout his career, Lud has served in various roles including president, CEO, and managing director. He has led or advised businesses in diverse industry sectors including marketing, aerospace tooling, cryogenics equipment, outdoor advertising, and cable television. He has guided businesses in exiting or outsourcing non-core segments, stabilizing workforces, transitioning family owned businesses to professional leadership, and leading business spin-off and sales processes in a variety of manufacturing industries.
Brian Fink currently serves as President & CEO of an Ohio-based manufacturing company. He holds a Master’s in Business Administration and a Juris Doctor from the University of Akron. Brian is admitted to practice in law in the State of Ohio. He has over 30 years of diverse experience including service on profit and nonprofit boards, small business ownership, executive and operational leadership, and international business development. Brian enjoys spending time with his family, traveling, and working on his farm. Mr. Fink was introduced to Accessia Health through board Member, Russ Phillips.
Brian received a BS degree in Marketing from Louisiana State University and served as Senior Vice President of Marketing, Public Affairs and Development for LCMC Health, a five-hospital non-profit New Orleans area healthcare system, until his retirement. He is actively involved with St. Joseph Benedictine Abbey & Seminary College, located in southern Louisiana where he has served on the seminary board, chairman of the long-range strategic planning committee, and was selected as the college’s 2016 alumnus of the Year. Brian is a former board member and past president of Ronald McDonald House Charities of South Louisiana, Inc., and serves as vice-chair on the boards of both the Miracle League of Greater New Orleans and North Shore, which are not-for-profit organizations that provide the opportunity for kids with special needs to play baseball and other sports in organized leagues.
Brian is married and has a married daughter, two married sons, and eight grandchildren.
Russ is the Managing Partner of The Phillips Organization, a Certified Public Accounting and Consulting Firm located in Canton, OH. He earned his B.A. degree in Accounting from Walsh University and obtained his Certified Public Accountant’s license from the Accountancy Board of Ohio. He also holds the credentials of Certified Valuation Analysis (CVA) and Master Analyst in Financial Forensics (MAFF), with a specialty in bankruptcy, insolvency, and reorganizations accredited by the National Association of Certified Valuators and Analysts (NACVA).
Russ has been married to his wife Tammy since 1982 and has two adult children. He currently serves on several local and national not-for-profit organizations and is an advocate for individuals with chronic health conditions.
Mr. Mula received his Bachelor of Science degree in Allied Health School of Physical Therapy from Louisiana State University Medical Center. He has served as a staff physical therapist at Baton Rouge Medical Center and currently owns his own physical therapy practice. In addition to Mr. Mula serving as our board member, he also is a member of the American Physical Therapy Association, APTA Geriatrics Division, and APTA Health Care Administration Division. He is married and has a son and a daughter.
Anna joins Accessia Health with over 16 years of nonprofit healthcare experience. She has won numerous awards for executing impactful digital and print brand campaigns and has led five organizational rebrands throughout her career.
In her role at Accessia Health, Anna is responsible for the strategic implementation of omnichannel marketing and communication efforts, that position the nonprofit as a leading patient assistance organization in the nation. Her approach reflects a commitment to showcasing the integral role of marketing and communications in every aspect of business.
“Nothing is linear in marketing, it’s often a complicated matrix of current processes and new idea building, and seeing all that as one big picture that moves a company forward is what excites me about the industry.”
Based in Louisville, KY, Anna previously served as Director of Marketing & Communications at Hosparus Health, one of the nation’s largest nonprofit hospice and palliative care organization in the US and serving Kentucky and Indiana. In this role, she was responsible for the brand management and reputation as well as the marketing strategy for multiple brands and service lines.
When not working, Anna spends her time with her husband and 3 kids. She is a houseplant enthusiast and loves weekends spent reading books and being outside.
As Executive Vice President of Information Technology, Mike is charged with the creation of strategic IT initiatives that align with the Accessia Health mission and long-term goals.
Mike has extensive experience in all aspects of healthcare technology. In previous roles, he provided CIO leadership and consulting services to a number of nonprofit organizations. Mike was with Marlin Private Equity as a technology and operations executive, providing due diligence and CIO leadership for Marlin healthcare technology acquisitions. Mike has also served in roles as the executive director of software program delivery for Aetna Healthcare, vice president of applications development for Coventry Healthcare, CIO of First Health Services, and VP of application development for Anthem Blue Cross Blue Shield of Virginia.
Jennifer Noonan is a dedicated healthcare professional who joined Accessia Health as the clinical program director in April 2021, bringing with her more than 25 years of clinical nursing experience. Her commitment and expertise quickly led to her promotion to senior director of clinical programs and compliance, and she now serves as vice president of clinical strategy and patient engagement. With a rich background in clinical practice and management across diverse healthcare settings, Jennifer possesses a deep understanding of program design and the delivery of services within highly regulated environments.
Jennifer’s career began in the fast-paced emergency department of St. Mary and Elizabeth Hospital in Louisville, Kentucky, where she spent 17 years, assuming leadership roles and contributing to EMR development and enhancements. Her passion for healthcare technology and innovation continued with her instrumental role in the clinical development, training, and implementation of Cerner within the Jewish Health System in Louisville. In 2014, she transitioned into hospice and palliative care, where she held leadership positions in the care of both adult and pediatric patients.
Her academic journey includes an associate degree in nursing from Kentucky State University, a bachelor’s degree in nursing from Western Governors University, and a master’s degree in nursing informatics with a focus on data analytics, also from Western Governors University. In September 2023, Jennifer was appointed to the board of directors for the National Association of Specialty Pharmacy, underscoring her industry expertise and leadership.
Outside of her professional life, she is a dedicated family person, married to her husband, Sean, and a proud parent of four teenagers. When she’s not spending quality time with her family and two rescue dogs, Jennifer indulges in her passion for martial arts, practicing taekwondo and judo. She also enjoys hiking and exploring new destinations through travel.
As Executive Project Manager, Ashley directs and integrates the activities of multiple projects within the Business Development, Operations, and Executive Departments ensuring that project efforts are cohesive, consistent, and effective in supporting Accessia Health (formerly Patient Services, Inc.) and the Accessia Health Foundation’s mission, goals, and strategic plan. Ashley joined the Accessia team in 2016 as Executive Assistant, then transitioned to Director of Development and Engagement in 2019. The Executive Project Manager role allows Ashley to go back to her career roots while continuing her passion for helping patients with rare and chronic illnesses.
Ashley received her A.A. from Richard Bland College of William & Mary in 2001 and went on to B.A. studies at Virginia Commonwealth University. As Virginia natives, Ashley and her husband reside just outside of the state capital where they spend time with their daughter enjoying the beautiful city of Richmond and the East Coast Beaches.
Lamont joined Accessia Health in 2008 as a staff accountant, assisting with financial services, audits, and managing inventory reconciliations for our Free Product program at the time. Over his tenure, he has held several leadership roles within the organization and was recently promoted to executive vice president of finance & administration.
Before joining Accessia Health, Lamont served as an officer in the banking and financial industry, holding leadership positions in mortgage, private client services, and commercial credit services.
A native of Richmond, Lamont earned his B.S. in Business Administration from Old Dominion University, double majoring in accounting and economics. He also completed an Internal Audit program endorsed by the Institute of Internal Auditors. Outside of Accessia Health, Lamont has served in various leadership roles within his church and fraternity, both dedicated to service and philanthropy. He has also volunteered with several youth sports organizations. In his spare time, Lamont is an avid video gamer and enjoys spending time with his wife and two children.
Tiara, appointed president in April 2024, brings over 20 years of expertise in the public health and nonprofit sectors to her role. Prior to her appointment, she had been leading Accessia Health in an interim capacity since June 2023, building on her decade-long tenure with the organization.
Throughout her career at Accessia Health, Tiara held various leadership positions, including senior vice president of programs and policy. In this role, she spearheaded strategic development and health equity initiatives and streamlined operational processes. Currently, she is leading an initiative to refocus and strengthen the nonprofit’s impact model, disease funds, and programs. This focus and work will more holistically address the unique needs of the communities it serves.
Tiara is a hands-on leader who is dedicated to fostering organizational growth and coaching staff members to expand their leadership skills. Her visionary approach and extensive organizational knowledge have also been instrumental in growing Accessia Health’s educational offerings for patients and their families.
She earned her Bachelor of Science degree from Virginia Commonwealth University in Richmond, Virginia, and her Master of Science in Education from Virginia Polytechnic Institute and State University, focusing on community health and health promotion. She is an active member of the Forbes Nonprofit Council.
Beyond work, Tiara engages in philanthropic activities and spends time with her two sons and husband.
Dave Griffiths serves as Vice President of Development for Accessia Health, having joined the organization in November 2021. He is responsible for identifying, developing, and managing fundraising and strategic partnerships with large corporations to increase patient assistance opportunities in Accessia’s specific disease programs. Dave joins the organization after more than 20 years of working in the nonprofit industry, combining his expertise in strategic corporate relations and alliance partnerships with fundraising and employee engagement for national and global nonprofits.
Originally from Dublin, Ireland, Dave has spent the last five years as a global partnership consultant for several European-based companies and international nonprofits. Outside of Accessia Health, Dave serves on the boards of several global volunteer organizations. He has also led strategic fundraising and partnership development training for many companies and nonprofit organizations, including the Resource Alliance U.K. and the U.S. Consulate General of Ireland office. Dave arrived in the US to play soccer at the University of Kentucky, where he not only earned his degree but met and married his wife, Brooke, a proud Brain Tumor Survivor. They have three children and live in Louisville, Kentucky.
May 26, 2022 — Circadian Rhythm Disorders (CRD) are disruptions with your circadian rhythm, also known as your “internal body…
April 29, 2022 — Imagine being diagnosed with a chronic illness. You’re sitting in an LED-lit doctor’s office as the…
March 28, 2022 — Imagine being sick several times in a year without much of a break in between. Now,…
March 3, 2022 — Billy is a young boy with hemophilia, and in this video from the CDC, he answers…
February 9, 2022 — Maurice Howerton was only 14 when he was first diagnosed with Hypertrophic Cardiomyopathy or HCM. Maurice often…
January 12, 2022 — Hereditary Angioedema (HAE) is a rare genetic condition that causes unexpected swelling, and it can happen in different parts of the body. The…
November 23, 2021 — Lysosomal Acid Lipase Deficiency (LAL) is a rare, genetic condition that causes individuals to have buildup…
September 13, 2021 — A kidney stone is a hard, crystalline mineral material that is formed within the kidney or…
August 24, 2021 — Lambert-Eaton Myasthenic Syndrome (LEMS) is an autoimmune disease that affects around 1,500 people worldwide. What is…
August 9, 2021 — Multifocal motor neuropathy (MMN) is a rare disease affecting the body’s motor nerves and occurs in…
June 23, 2021 — Receiving a Gaucher disease diagnosis can be overwhelming. Gaucher can have many different symptoms, meaning there…
March 12, 2021 — Chronic pain is a constant, ongoing battle, and one of the most challenging aspects can be…
October 5, 2020 — For so many in the chronic illness community, there is something that keeps us going: Inspiration.…
September 14, 2020 — Sickle cell disease, or sickle cell anemia, affects thousands of people around the world. September is National…