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Understanding Life With MPS 1 A diagnosis of MPS 1 can bring many questions for individuals and families. What symptoms…

When Your Health Changes Your Work Life A chronic illness diagnosis can change more than your care routine. It can…

Living Rare, Living Fully For Lauren McCabe, Digital Brand Manager at Accessia Health, our mission carries a deeply personal meaning.…

A Guide to Hereditary Angioedema Imagine your hand suddenly swelling to twice its normal size, with no bee sting, no…

Protecting Access to Essential Care Every fall, millions of people have to make one of the most important financial and…

Gaucher Disease Explained: Signs, Screening, & Support If you’ve never heard of Gaucher (pronounced “go-SHAY”) disease, you’re not alone. It’s…

Every patient deserves timely, affordable access to the care they need. On September 16, Accessia Health returned to Capitol Hill…

Click here to view Accessia Health’s September 2026 Newsletter.

Financial Resources Beyond Your Copay Living with a rare disease can bring financial challenges that extend far beyond the cost…

Prioritizing Oral Health The mouth is often referred to as a window into the body’s health. When managing a rare…