Your Monthly Accessia Health Newsletter
As summer winds down, we’re sharing updates, opportunities, and ways you can take part in our mission to uplift and support those navigating complex health challenges.
First, Accessia Health is seeking qualified applicants to serve on our newly formed Medical Advisory Council (MAC). The Council plays a key role in providing expert medical guidance to support our mission of advancing equitable access to healthcare including those with rare and chronic diseases. We invite you to apply today!
We’re moving into the second half of the 2025 conference season and are excited to be speaking and exhibiting at the Healthcare Advocate Summit (HAS) September 2-5. If you’re attending, take a moment to meet with the team at our booth and join our panel sessions.
August is Make-a-Will Month, a timely opportunity to consider your legacy. Including Accessia Health in your estate plans ensures that future generations can access the care they deserve. Talk with your financial advisor today about how you can make a tax-deductible gift back through planned giving.
Finally, we’re hiring! Accessia Health is looking for an Insurance Case Management Specialist to join our Patient Services team. This role plays a vital part in helping patients navigate access to insurance benefits and health resources. If you’re passionate about patient support and community care, I encourage you to apply.
Thank you for continued engagement; it drives everything we do.
Accessia Health is now accepting applications for our Medical Advisory Council (MAC).
The MAC will play a vital role in advancing our mission to ensure equitable access to healthcare for individuals living with rare and chronic diseases. MAC members will provide expert medical insight and recommendations to the Accessia Health Board of Directors, helping guide the organization in staying at the forefront of healthcare advancements while furthering our charitable mission.
We are seeking physicians, healthcare professionals, and academic leaders who are passionate about expanding access to treatment and contributing their expertise to a national nonprofit committed to patient care innovation.
Submit your application by September 12, 2025
We’re gearing up for our return to the Healthcare Advocate Summit (HAS), taking place in Las Vegas, NV from September 2-5! The summit is the premier event for advocates, key industry leaders, and those involved in patient access, navigation, and reimbursement.
For those attending HAS, stop by Booth #101 to visit with our team. This is a great time to meet our new EVP of Development and Growth, Alan Wood, alongside our VP of Clinical Strategy and Patient Engagement, Jennifer Noonan. To schedule a meeting time with either Alan or Jenn, please reach out to them via LinkedIn or by email (awood@accessiahealth.org, jnoonan@accessiahealth.org)
President Tiara Green will also be presenting on two different panel sessions:
– How to Compliantly Work with Charitable Patient Assistance Programs (CPAPs) | September 3 | 3PM PST
– Medicare Part D Changes in Motion | September 3 | 4PM PST
You can learn more about either session by visiting our Conferences page, or exploring the HAS session agenda at the link below.
Our team is continuing to attend events and conferences focused on elevating patient voices and addressing unmet healthcare needs.
Watch our latest conference sessions and stay tuned for where we’ll be next to connect with us!
Health Insurance and Medication Coverage 101
Understanding how your medications are covered can be the key to better health and fewer surprises at the pharmacy.
In our latest blog, we
break down:
- What medication coverage really means
- How your meds are administered
- How that affects your out-of-pocket costs
- Understanding provider network
Accessia Health is actively looking for a Insurance Case Management Specialist to join our Patient Services team!
Responsibilities include:
- Assist individuals in obtaining health insurance to meet their healthcare needs
- Conduct benefits investigations
- Educate and empower patients on healthcare topic
- Maintain a Caseload of Individuals for contracted programs
At the time of this newsletter, the following programs are open and accepting applications. Apply today for assistance*.
- Alpha 1
- Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
- Circadian Rhythm Disorders
- Fabry
- Gaucher Disease
- Healthy People. Healthy Communities. Oral Health Fund – serving MI, IN, and OH
- Hereditary Angioedema
- Hypoparathyroidism
- Kidney Stones
- MPS 1
- Myasthenia Gravis
- Plasminogen Deficiency
- Pompe
- Pulmonary Fibrosis
- TTP
*Program space is limited and is offered on a first-come, first-served basis. Programs will only remain open as long as funding is available.
If a program is full, you can still apply to add your name to the program waitlist. Once you are on the waitlist, you will be notified if assistance becomes available.
To apply:
- Click the button below.
- Select ‘open’ under ‘step two’.
- Select the appropriate program and begin the application process.
APPLY FOR PATIENT ASSISTANCE
August is National Make-a-Will Month; a perfect reminder to secure your legacy. By including Accessia Health in your estate planning, 
August is National Make-a-Will Month; a perfect reminder to secure your legacy. By including Accessia Health in your estate planning, you can ensure future generations have access to life-changing care. Creating a will helps you ensure your wishes are honored and your loved ones are cared for, support causes you believe in, leaving a legacy of compassion and hope, and provide long-term resources that will help advance equitable access to healthcare.
Talk to your financial advisor today about legacy giving.
Members of Congress are home for the August recess — making now the perfect time to connect with them about the healthcare issues that matter most. Patients, caregivers, and advocates like you have the power to shape the conversation around healthcare funding and access to care.
Call or visit your lawmakers while they’re in-district and urge them to protect critical health programs before the September 30 funding deadline.
Visit our Policy & Advocacy page for resources, talking points, and tools to help you take action.
