Understanding Myasthenia Gravis and Finding Support

 

For over 70,000 Americans, getting the diagnosis of Myasthenia Gravis (MG) can be daunting and confusing. While the onset of the disorder may be sudden, symptoms may not be immediately recognized as myasthenia gravis. Furthermore, the degree of muscle weakness involved varies greatly among individuals. At Accessia Health, we’re committed to supporting those facing an MG diagnosis by providing education, case management, and financial assistance for medical expenses.

 

What Is Myasthenia Gravis?

Myasthenia Gravis (MG) is a rare autoimmune neuromuscular disorder characterized by extreme fatigue and profound muscle weakness. In individuals with MG, antibodies disrupt the communication between nerves and muscles by blocking the transmission of impulses from the brain before they reach the muscles. This interference can impair essential functions such as vision, swallowing, smiling, walking, and even breathing, significantly affecting daily activities. First documented by Oxford physician Thomas Willis in 1672, MG continues to challenge those it affects, but advancements in research and treatment offer hope for improved management and quality of life.

 

Symptoms and Diagnosis

  • Drooping Eyelids (Ptosis) – One of the earliest signs; affects one or both eyelids.
  • Muscle Weakness – Progressive weakness that increases with exertion and improves with rest.
  • Double Vision (Diplopia) – Caused by weakened eye muscles, leading to blurred or misaligned vision.
  • Difficulty Swallowing (Dysphagia) – Trouble swallowing food or liquids, increasing choking risk.
  • Slurred Speech (Dysarthria) – Weakness in facial and throat muscles affecting speech clarity.
  • Shortness of Breath – Weakness in respiratory muscles can make breathing difficult.
  • Difficulty with Facial Expressions – Trouble smiling, frowning, or keeping the mouth closed.
  • Weakness in Neck, Arms, and Legs – Can affect movement, making lifting objects or walking difficult.

A diagnosis of MG may be confirmed based on a person’s response to anticholinesterase medicine, which can be used to treat symptoms of muscle weakness. If symptoms improve with this treatment, it can confirm myasthenia gravis. In addition to this test, other diagnostic methods may be used for a diagnosis, including:

  • Blood tests – These look for specific antibodies that may be present in people with MG
  • Genetic tests – Used to check for inherited conditions that may contribute to MG.
  • Nerve conduction studies – A standard procedure called repetitive nerve stimulation is used to assess how nerves communicate with muscles.
  • Electromyogram (EMG) – A test that measures the electrical activity of a muscle. An EMG can detect abnormal electrical muscle activity due to diseases and neuromuscular conditions.

 

Finding Support for Myasthenia Gravis

Currently, there is no known cure, but most people with MG can receive treatment to increase muscle function and prevent swallowing and breathing issues. There are also a number of organizations and resources available to help patients and their families throughout the healthcare journey.

Founded by Jane Ellsworth in 1952, The Myasthenia Gravis Foundation of America (MGFA) is the largest, leading patient advocacy organization solely dedicated to finding a cure for MG while improving the lives of people living with the disease.

MGFA offers comprehensive resources for those living with MG, including support groups for patients, caregivers, and Spanish speakers.

To learn more about MG, we also encourage you to visit these additional resources:

Accessia Health Programs

Accessia Health is committed to supporting Our holistic, inclusive, outcomes-focused approach offers comprehensive support that includes case management, education, and financial support for health insurance premiums, medication copayments, travel, and other essential medical expenses.

We are pleased to offer assistance for people living with Myasthenia Gravis who need help paying their healthcare costs. Individuals can apply for assistance, or, if the program is full, a waitlist option is available.