“Once I was diagnosed [with Fabry disease], it became an issue for insurance and [finding coverage]. I learned about Accessia Health through a Fabry support and information group. Accessia Health has been key in helping me keep my costs down for the copays of all the bills I get. It’s really good to be able to have their help with this.”

“Thank you so much to Accessia Health for all they’ve done not only for me financially, but just the compassion and help they’ve provided over the many, many years. I couldn’t be happier to express my appreciation.”

“Without their help, I couldn’t afford all of my treatments, insurance, and travel, making life even more stressful for a single mother of two. I’m forever grateful for the assistance I receive and could never put into words how very important and meaningful it is in our lives. I’m beyond thankful for the help I receive from Accessia Health, they absolutely make my life easier during the most difficult times.”

“From the moment I connected with them, Accessia Health was a steady and expert guide. Their team, with their specific expertise, provided clear guidance on complex legal issues and offered compassionate support for the difficult emotional aspects of the case. Knowing I had professional representation, specifically tailored to my situation, made all the difference and helped me manage the immense stress.

Because of the generous, non-profit support Accessia Health receives, I now have the essential benefits I need. It is impossible to overstate the relief and security this has brought to my life. I encourage donors to support Accessia Health—your contributions enable this organization to provide a truly life-changing service to people struggling with rare chronic disorders.”

“I purchase my own medical insurance through the marketplace, and the financial assistance has been such a blessing—it means I don’t have to choose between groceries and prescriptions. I’ve served as a Patient Advocate with Accessia Health because I wanted to give back and help to say ‘thank you’ for the assistance I received.”

“May 25th, 2024, is the day I received the letter from Accessia Health, telling me there was an open spot for financial assistance. I had almost given up when the letter came, and to imagine I won’t have to worry about missing [medication] doses again was beyond my imagination.”

“Without Accessia Health, I wouldn’t have been able to afford non-traditional healthcare expenses that my insurance didn’t cover but were necessary to manage my long-term symptoms. It’s been a huge stress relief to receive the assistance and support from Accessia Health.”

“Accessia Health helps with my insurance premiums and medicine copays. As an HAE patient, this means I have access to the treatments that allow me to enjoy my birthday at the beach with my daughter (also living with HAE) and neither of us has to worry about having a swell!”

“I was diagnosed with Hereditary Angioedema a few years ago. Accessia Health has been an amazing support to me throughout my HAE journey! They have eliminated the stress of how to pay for my medication, hospital visits, doctor visits, and travel expenses to see HAE specialists. It’s obvious they truly care about patients.

Living with and managing this rare disease can often feel like a rollercoaster. Some days I feel like a warrior. Some days I feel like a broken mess. Many days I feel like a combination of both. But every day I will get up, fight, and try for this beautiful gift of life.”

“It’s been such a relief and weight off our plates to know that our son has insurance with Accessia Health’s help and allows us to focus on providing him a childhood that allows him to grow socially, emotionally, and physically healthy.”